Hi June, welcome to TP
I've put a link in below to the AZ society fact sheet on DLB which I'm sure you'll have found anyway, but just in case..
I suspect although it was never diagnosed this was what my mother had although it was never fully investigated due to her age and infirmities and I never pushed as them, the most important thing to me is dealing with the reality not necessarily knowing the "name of the beast". (other people feel differently).
She had the Parkinson's like symptoms and the visual hallucinations (big time) so I guess that's what it was but even the AZ fact sheet says "A diagnosis of DLB is largely based on the symptoms" so it's only an opinion, best guess or whatever.
The second link is to NHS Choices where they review Gingko, in their conclusions they say "there is no evidence suggesting that Ginkgo biloba can prevent or slow dementia". I'm not knocking it but if you want to try using "alternative" or yet unproven medication then there is a lot of "evidence" and opinion that Turmeric and coconut oil (oil not milk) can help. I'm willing to try and incorporate a bit of anything that might help in our diet and so I've gone with them as they're easy to incorporate into many meals and neither seem to have any adverse reports. if someone wants to sell you something that you can't get in a shop walk away, there is so far no magical solution.
Now you've made your first post come back and talk, we do bite but we take our teeth our first
K
Thanks for your reply, coconut oil et al being done.
It's the rapid decline that is so hard to deal with.
JH