1. Expert Q&A: Benefits - Weds 23 October, 3-4pm

    Our next expert Q&A will be on the topic of benefits. It will be hosted by Lauren from our Knowledge Services team. She'll be answering your questions on Wednesday 23 October between 3-4pm.

    You can either post your question >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll be happy to ask them on your behalf.

  1. Alex54

    Alex54 Registered User

    Oct 15, 2018
    159
    Male
    Newtown, Wales
    I am lucky if I get three/five hours of sleep a day, my wife (PWD) wakes up around three each morning and makes sure I do not get back to sleep.
    Has anyone else suffered this sort of sleep deprivation and how can I get around it?
     
  2. karaokePete

    karaokePete Registered User

    Jul 23, 2017
    4,923
    N Ireland
    Yes, I have the sleep deprivation problem due to my wife being active at night. Her GP increased the dosage of her anti anxiety meds last summer and that helped a little. I also try to catch a cat nap whenever I can - such as when my wife is sat in front of the TV watching quiz shows.

    At times it's a very difficult situation. On one occasion last summer I had gone without sleep for so long that I just had to throw myself into a chair as I thought I was going to keel over.:(
     
  3. PalSal

    PalSal Registered User

    Yes, we had lots of problems with sleep and restlessness. We started using the anti-aniexty medicine in the evening which seems to help with his sleeping.
    But this is a problem many of us face. And it is impossible to be patient and kind when one is sleep deprived.
    We are using Dipiperon.
     
  4. Alex54

    Alex54 Registered User

    Oct 15, 2018
    159
    Male
    Newtown, Wales
    I am trying something different today - I have cut down on fluid intake after midday and will wake her up for a toilet break around 10 pm.
    It is far from ideal but if I can make waking up in the morning a bit later...
     
  5. PalSal

    PalSal Registered User

    Both excellent strategies.
    hope it works.
     
  6. sqeaker

    sqeaker Registered User

    May 10, 2017
    26
    Hi I am the same as my husband was getting up in the night to the bathroom, however he did not know that he wasn't going in the toilet but on the floor. So now when he moves im awake, I am so tired I try to sleep but im awake so quick, then changing beds in the early hours, so after that im fully awake and he just goes back to sleep, how do w cope
     
  7. Alex54

    Alex54 Registered User

    Oct 15, 2018
    159
    Male
    Newtown, Wales
    The short answer is I am not coping with the sleep deprivation and blacked out last week. It's been two or so months now of constant three am wake up and not being able to get back to sleep. At best I am getting four hours of sleep a day. I tried going to sleep when my wife does, but all I do is wake up a few hours later and cannot get back off to sleep.

    Well, the changes yesterday made little difference, wife still awakes at the same time in the morning. The toilet call late at night was nearly impossible and took almost an hour.

    I will keep trying for a few days more days and see what happens.
     
  8. marionq

    marionq Registered User

    Apr 24, 2013
    5,853
    Female
    Scotland
    I think you have to go back to the gp and look for sleeping tablets in the short term at least to break this pattern. With this illness phases occur where you struggle with one issue and then it’s replaced by another. I found getting my husband up to the toilet worked really well for a while but now I just can’t wake him in the middle of the night so have to accept he will be wet in the morning. This too will change at some point.
     
  9. Alex54

    Alex54 Registered User

    Oct 15, 2018
    159
    Male
    Newtown, Wales
    I wonder if social services would agree to a carer staying overnight one night a month? I could then book myself into the nearby hotel and catch up on my sleep.
     
  10. witts1973

    witts1973 Registered User

    Jun 20, 2018
    709
    Male
    Leamington Spa
    Hi would it be possible for your wife to go to a day centre to let you get perhaps a few hours in bed during the day
     
  11. AliceA

    AliceA Registered User

    May 27, 2016
    2,413
    Good idea if there is a day centre. We do not have that facility in our area. I sleep at odd times some times, but sleep is vital.
     
  12. swood

    swood Registered User

    Sep 10, 2017
    8
    Very comforting to see that others too are suffering from continuously interrupted sleep.my husband can get up to try to go to the toilet up to 5 times throughout the night.he doesn't know where he's going is very wobbly and shuffles hanging onto door knobs etc in the past has gone to the toilet in the hall by the bed etc so each time I have to get up to take him.this has been going on for two years and I am exhausted.all the doctor has offerred is a bladder relaxant tablet which doesn't really work .has anybody got any ideas.he is very rigid and in a world of his own on waking and won't use a bottle.
     
  13. witts1973

    witts1973 Registered User

    Jun 20, 2018
    709
    Male
    Leamington Spa
    It certainly is vital, before I had help from carers I was on the verge of a nervous breakdown,a few hours sleep a night for months,I switched my phone off and couldn't even speak to friends.I hope things get better for you
     
  14. Alex54

    Alex54 Registered User

    Oct 15, 2018
    159
    Male
    Newtown, Wales
    Update: Saturday 26th January.
    Last night was exceptionally demanding, basically, my wife (PWD) needed help at eleven, one, three and five in the morning. What was different is that I went to bed at 6 pm and managed to grab a few hours sleep. Between the hours of eleven and five, I think I was just dozing most of the time as getting off to sleep is something I find hard to do.
    The good news is that for the first time in years the loud tinnitus in the back of my head has gone.

    Day centers are out of question for us since our doctor has taken away my driving license for one blackout last week. Also even although I need the sleep I find it also impossible to sleep during the day (unless I sit down on the sofa and watch TV).
     
  15. jenniferjean

    jenniferjean Registered User

    Apr 2, 2016
    473
    Female
    Basingstoke, Hampshire
    I'm coping with the toilet visits during the night, but what has started now is that a visit to the toilet often is followed by a wish to go and get a drink of water. I'm afraid to let him cope with the stairs during the night, for one thing he can never remember where the light switch is. So I have to get up and go with him, that's when I find it difficult to get back to sleep.
     
  16. canary

    canary Registered User

    Feb 25, 2014
    10,531
    Female
    South coast
    Can you put a glass/cup of water beside his bed at night, so he doesnt have to go downstairs?
     
  17. jenniferjean

    jenniferjean Registered User

    Apr 2, 2016
    473
    Female
    Basingstoke, Hampshire
    A good idea. I might try putting one on my side, I don't trust him with one on his side. He struggles to put his light on and could easily knock it over. But as you say it would stop the trip downstairs.
     
  18. marionq

    marionq Registered User

    Apr 24, 2013
    5,853
    Female
    Scotland
    I put sensor lights on the skirting boards on hall and stairs. No switching on and they are bright and clear. They attach with a sticker so no need for a handyman.
     
  19. NORTHSIDE

    NORTHSIDE Registered User

    Jan 28, 2017
    80
    Male
    Northumberland
    My wife has just started at a day centre, they pick up and drop off by mini bus and only charge £1 each way. Could you find a similar service nearby? The only problem I have is so far she has refused to get on the bus and I have had to follow in the car. Nothings straight forward! Good luck
     
  20. PalSal

    PalSal Registered User

    j
    @marionq Where did you find sensor light with sticker....not sure but sounds like a good idea. can you post a photo how they look in place. (would have be possible)
     

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