My sister is 49 and has been having tests for Ftd - I am worried that her house will be sold to fund care. I would rather she could spend this money on living what few years she would have if this diagnosis is correct as this disease is very fast moving. Does anyone have any ideas on who to ask. My mum lives alone next door to my sister who also lives alone.
Hi Sue, welcome to TP
If she lives in the house alone then ultimately it may have to be sold, however, it's not that simple.
If she is alone then she needs to plan her decline, she needs to give Power Of Attorney (POA) to someone (or more than one person) she trusts and decide with them how she wants things done.
If you don't engage with Social Services they won't come looking for you unless something goes badly wrong in which case they have to look into the situation.
A plan for example might be she gives POA to say you and a close friend or another relative so that when you decide the time has come you get her a place in a care home (which one may be a decision she can be involved in now) then you can sell the house and pay for her care.
It's really quite a complicated issue but well managed she could be in a good home until the money runs out and the council get involved. It's your first post so have a read around and you have a lot to learn.
Tell Try telling this "if this diagnosis is correct as this disease is very fast moving" to some people who post on here and were diagnosed over 15 years age and can still work a computer and type some very coherent messages.
Welcome to the club
K