I haven't been here in a long while. My husband was diagnosed with Posterior Cortical Atrophy a couple of years ago. It's been a challenge as everyone here caring for someone with dementia will understand. I have a beef: I'm having a hard time wrapping my head around people that refer to this disease as a "journey". It's not a journey to me - its a freeking nightmare. It's a nightmare to watch someone you love deteriorate and lose all of the capabilities they had before. It's a nightmare to have to help your loved one with everything, from getting dressed to using the bathroom. I shudder to think, as this disease progresses, how bad things will get: hallucinations? Bed-wetting? Not knowing who I am? Not being able to eat or swallow? Does that sound like a journey to you? Someone on another forum referred to it as a "marathon". I've run a marathon. It was hard work. A lot of training and a lot of frustration. A marathon doesn't come close to dealing with dementia. What are your thoughts? Isn't there another term we can use that's more appropriate? I will never refer to this as a journey (or a marathon).