jean

[Jean by the sea]

Hi everyone I'm new to this site, just wondered if anyone has a partner with front lobe dementia. As I was wondering if you have any tips on finding better ways my hubby can communicate, as he finds it very difficult to say anything

 

[Perfectdaughter]

Hi everyone I'm new to this site, just wondered if anyone has a partner with front lobe dementia. As I was wondering if you have any tips on finding better ways my hubby can communicate, as he finds it very difficult to say anything

Hello Jean. I don't have any experience of this but I hope someone will come along soon who does. I've found TP very helpful.
There is a front lobe dementia support group website which might have information that is useful for you. I am unable to post the link but if you google Frontotemperal dementia support group you should be able to find it.

 

[Hellyg]

Hello,

My husband has frontal lobe dementia, semantic variant. Therefore communication is his issue.

I am also struggling to communicate with him, so sorry no advice, but I do understand how hard it is.

I am seeking advice from support groups, so will share as if I learn more

H

 

[Hellyg]

Sorry should have said the link to FTD support forum is http://www.ftdsupportforum.com

 

[philippe]

What are the symptoms?

Hi Jean and Hellyg -

There are two types of communication problems with FTD:
1) can't physically speak (progressive nonfluent aphasia)
2) can speak but makes no sense (semantic dementia or fluent aphasia)

Would you describe your respective cases?

My mom has semantic dementia - she talks a lot but makes sense rarely. She has a hard time comprehending what I'm saying to her and saying anything comprehensible to me. I communicate with her in as short a manner as I can. For example, I periodically repeat, "hungry?" or "bathroom?" or "cold?" Part of the time she responds on topic but mostly she doesn't.