Expert Q&A: Rare dementias - Tues 3 March, 3-4pm
Our next expert Q&A will be on the topic of rare dementias. It will be hosted by Nikki and Seb from Rare Dementia Support. If you have any questions about rare dementias, they will be here to answer them on Tuesday 3 March between 3-4pm.
You can either post your question >here< or email them to us at firstname.lastname@example.org and we'll be happy to ask them on your behalf.
Well done! We all have our own needs to keep things, but sometimes they hold people back. I have start to take photos of some things instead. I think the secret is to let go at the right time.All the equipment has gone, so that is one big job out of the way. Mum's rollator and frame, which we bought, is still in one of the side rooms so I will have to store them up in the garage loft. Not sure what I'll do with them, hopefully I won't need such things for a long time! I feel attached to the rollator as mum used it for many years. Daft, but true. The bath chair/lift is stored in a wardrobe. Mum couldn't use it for ages anyway, but we kept it in the bath and used it as a table to store the wash bowls on. I am keeping that as a friend may take it for her mother (who is in her 80s and clearly developing some cognitive issues).
Moving furniture around is a good idea. I have a large area of hallway that I may turn into a dining area. I will of course need a smart new table and chairs! The current dining room will become a study/book/paperwork storage area and the small bedroom upstairs will be rearranged to become a proper single bedroom.
Dear Marnie,Thank you. Yes, it's all still a bit too recent, and the funeral is still just under two weeks away. Once that has happened hopefully I can start to settle a bit better.
I smiled a little when the post arrived today - a sympathy card from the funeral directors! There was no pressure when I was at the FDs about what to choose, but I suspect the costs are fixed. I usually do negotiate or ask for a better deal when I'm buying something big, I have no idea why I didn't over something so expensive. Maybe it didn't seem right at the time! I guess if you consider all the staff involved, premises, etc then it must cost to run such a business, but it is a horrendously expensive cost to the individual, and I wonder what happens when someone doesn't have a few thousand for a funeral. It really is quite shocking that death is so expensive. I'm still intrigued by the £100 quoted for the obituary in the local paper. I must go on line and see if it really does cost that much. Seems a lot.
The cards people have sent me have really helped. Some have written such wonderful words.
A neighbour has invited me round for a dinner party on Saturday night, with some other neighbours. I will go. It's not far to come back if I find it too much, but I think it's probably better that I keep mixing with people rather than staying in too much. Today was a sorting day. I threw out some ancient clothes of mum's that are no good for even the charity shop. I haven't touched the ones in her main wardrobe yet. Too soon, too heartbreaking. I found 50p in one of the coat pockets!!!
I'm sorry for your loss Timeless. It's incredibly hard to lose your mum. I'm six weeks on but I know it will get easier in time. Now the funeral has happened (it was on Monday) I feel more at peace somehow, now that mum is laid to rest. I wish you strength though this very difficult time. Very best wishes.Hi Marie
I hope you are doing not so bad and the funeral went well if it has been passed.. Big hugs.
My mum died on Sunday whilst I was with her and finding it tough at the moment and can't seem to cry a full cry if you know what I mean. I have a picture of her on my phone that I took the other day from a photo at the house but might delete it for now as it can't do me any good looking at it all the time. Just find it hard I will not see her smile again and talk to her but know time will heel. Anyway bless you and keep well. X