1. Expert Q&A: Benefits - Weds 23 October, 3-4pm

    Our next expert Q&A will be on the topic of benefits. It will be hosted by Lauren from our Knowledge Services team. She'll be answering your questions on Wednesday 23 October between 3-4pm.

    You can either post your question >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll be happy to ask them on your behalf.

  1. annesharlie

    annesharlie Registered User

    Hi all

    I've been away for about 5 weeks, traveling with Ron to see family and a bit of holidaying in Europe. In all, I am happy I did it but it really is stressful going out and about with someone who absolutely would be at a loss if we got separated. It is quite different when we're out and about round here where everything is familiar to both of us.

    An unanticipated stress was that Ron doesn't have bladder and bowel control as he should - it's not that he's incontinent, but if he needs to go, he needs to go NOW - very much like a 3 year old, you know they need to get to the the loo within minutes of mentioning they need to go. It never used to be this way, so I have a horrible feeling it's the progression of the dementia. This makes for high stress situations in unfamiliar cities with luggage! To me, this is happening way earlier than I thought it would - I thought by the time there were bladder and bowel issues, the person would be quite far along in the disease. Do any of you have a similar experience? I suspect there's not really much advise but of course I'd appreciate any!
     
  2. jackie1

    jackie1 Registered User

    Jun 6, 2007
    238
    Cheshire
    hello,

    Glad you had a good break.
    No advice, sorry. But I have noticed that John's aim is no longer what it should be and there have been instances of wet underpants - have been trying to block the possibility of further deterioration out of my mind
    Love
    Jackie
     
  3. Canadian Joanne

    Canadian Joanne Volunteer Moderator

    Apr 8, 2005
    16,110
    Toronto, Canada
    What I used to do to get my mother to go to the toilet was to say I needed to go & did she want to come with me? This whenever I saw a toilet in sight.

    A little more difficult for you when you're traveling Anne. I think it's the disease process and it's just a little slippage at first. No advice really - as far as these problems happening later on - not necessarily. We can only be a proactive as we can (I do hate that word - what would be a better one??).
     
  4. Skye

    Skye Registered User

    Aug 29, 2006
    17,000
    SW Scotland
    Hi Annesharlie and Jackie

    Sorry you're having this problem. I went through it with John, and it really is hard to deal with. Annesharlie, you're right, it early for these problems to start, John was OK for six years. I'm afraid it is the start of incontinence, and once it starts, progression is in some cases quite quick.

    Jackie, I'd have a word with your GP and ask for a referral to the continence advisor. They's very helpful, and can come up with all sorts of strategies for coping.

    Annesharlie, I'm afraid that's not very helpful for you, because I don't know what your system is, but I'd still have a word with your GP. It could be that it is simply a prostate problem, which could be corrected.

    Good luck,
     

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