Mum got diagnosed with Alzheimer's in August and has declined rapidly, that quickly that we now a full time live in carer which she isn't happy about.
She lives in a retirement complex and the staff and the live in carer are starting to struggle with certain situations. The main thing is now the lack of sleeping. She is up all night, most nights and is totally confused regarding night and day. She sometimes phones me around 5 times through the night and the record the other night was phoning my brother 20 times between 2am and 4am. The complex has put a sensor on her door, so they get notified when she tries to leave, this also bleeps very loudly and notifies the live in carer. She is trying to get out more and more in the middle of the night and the carer is getting very little sleep. I have had 10 messages from the carer since 5am this morning saying she tried to get out 3 times last night.
We are trying our hardest to keep mum at home as she can still do so much herself, we have set up a taxi account so she can still go and visit friends and get herself about without having to worry about cash etc. She still socialises at events held at the complex but they are finding mum difficult with other residents and are getting complaints - mum has lost some of her filters and can upset people with what she says.
I get zillions of phone calls from her asking me to save her, to live with her, for her to live with me and feel so guilty but it really isn't practical where I live to support mum with what she needs. I also work full time. Mum does have another assessment in early January so we are waiting to hear what they say. It is a shock how she has decline so quickly. The other thing is that we have an EPA so are not in charge of her health and welfare. Do I need to get the social services involved if the memory clinic think it is time to move mum into a care home, or the live-in care can't continue because of lack of sleep ?
Many thanks for reading and any feedback is really welcome.
Ruth
She lives in a retirement complex and the staff and the live in carer are starting to struggle with certain situations. The main thing is now the lack of sleeping. She is up all night, most nights and is totally confused regarding night and day. She sometimes phones me around 5 times through the night and the record the other night was phoning my brother 20 times between 2am and 4am. The complex has put a sensor on her door, so they get notified when she tries to leave, this also bleeps very loudly and notifies the live in carer. She is trying to get out more and more in the middle of the night and the carer is getting very little sleep. I have had 10 messages from the carer since 5am this morning saying she tried to get out 3 times last night.
We are trying our hardest to keep mum at home as she can still do so much herself, we have set up a taxi account so she can still go and visit friends and get herself about without having to worry about cash etc. She still socialises at events held at the complex but they are finding mum difficult with other residents and are getting complaints - mum has lost some of her filters and can upset people with what she says.
I get zillions of phone calls from her asking me to save her, to live with her, for her to live with me and feel so guilty but it really isn't practical where I live to support mum with what she needs. I also work full time. Mum does have another assessment in early January so we are waiting to hear what they say. It is a shock how she has decline so quickly. The other thing is that we have an EPA so are not in charge of her health and welfare. Do I need to get the social services involved if the memory clinic think it is time to move mum into a care home, or the live-in care can't continue because of lack of sleep ?
Many thanks for reading and any feedback is really welcome.
Ruth