Information and Resources: Dealing with dementia and cancer

[molliep]

We have created this thread as a place to share information and resources that may be helpful for people caring for someone with both dementia and cancer.

If you have come across any resources that you find particularly helpful, please feel free to share them here to let others know.

 

[molliep]

Here is a guide developed by Macmillan and DementiaUK that you may find helpful. It is made for anyone providing care for a friend or family member with both dementia and cancer, and includes information about cancer treatment; planning for the future; symptoms and side effects; and getting practical help and support.

http://www.dementiauk.org/wp-conten...d-dementia-a-guide-for-carers-Sept-17-min.pdf

Best wishes,
Mollie

 

[molliep]

Caring for a person with a stoma and dementia? ColostomyUK have created a short guide of hints and tips that may be helpful.

http://www.colostomyuk.org/wp-conte...ng-for-a-person-with-a-stoma-and-dementia.pdf

Best wishes,
Mollie

 

[Shedrech]

link to the

Expert Q&A: Dealing with dementia and cancer –​

Expert Q&A: Dealing with dementia and cancer – Wednesday 30th January, 2.30-3.30pm

Supporting and caring for a loved one with the complex combination of dementia and cancer can be extremely challenging. We will be having an expert Q&A on dementia and cancer, hosted by Lorraine Burgess, a Macmillan Dementia Nurse Consultant at the Christie Hospital in Manchester, who supports...

forum.alzheimers.org.uk

 

[Shedrech]

Blog: The Challenges of Living with Both a Diagnosis of Cancer and Dementia​

An interesting blog post with Admiral Nurse, Debby Veigas, around the challenges that caring for someone with dementia and cancer brings.

https://www.dementiauk.org/the-challenges-of-living-with-both-a-diagnosis-of-cancer-and-dementia/

 

[Shedrech]

Living with Cancer and Dementia, Memories of Brian shared by his wife June Hennell MBE​

Living with Cancer and Dementia, Memories of Brian shared by his wife June Hennell MBE

Living with Cancer and Dementia, Memories of Brian shared by his wife June Hennell MBE Below are some memories and reflections shared by June Hennell, who cared for her husband Brian with both cancer and dementia. '“Are you sure that I've got cancer? I've already got dementia you know...

forum.alzheimers.org.uk

 

[Shedrech]

Making cancer treatment decisions for a family member with dementia​

Making cancer treatment decisions for a family member with dementia

Making cancer treatment decisions for a family member with dementia Have you had to make difficult decisions about whether or not to pursue cancer treatment with/for a family member with dementia? What factors are important to consider when making the decision? What advice would you give to...

forum.alzheimers.org.uk

 

[Shedrech]

Dealing with your loved one not remembering they have cancer​

Dealing with your loved one not remembering they have cancer

One of the challenges of caring for a loved one with both dementia and cancer can be if they do not remember that they have a cancer diagnosis. We are sharing some experiences from carers of people with dementia and cancer. They reflected on the positives of their loved one not knowing they...

forum.alzheimers.org.uk

 

[Shedrech]

Getting a diagnosis of cancer and dementia​

Getting a diagnosis of cancer and dementia

What are your experiences of a loved one receiving a diagnosis of cancer and dementia? Below is the experience of a woman who cared for her husband with frontotemporal dementia and prostate cancer. In particular, she speaks of the difficulty of identifying her husband’s symptoms. We’d be happy...

forum.alzheimers.org.uk

 

[Shedrech]

How can I make trips to the hospital for oncology appointments/treatment easier?​

How can I make trips to the hospital for oncology appointments/treatment easier?

How can I make frequent trips to the hospital for oncology appointments and/or cancer treatment easier for myself and my loved one with dementia and cancer? Family members and carers play a vital supportive role for people with dementia, particularly in helping them to engage with and navigate...

forum.alzheimers.org.uk

 

[Shedrech]

Cancer care for people with dementia: A webinar and research article​

Cancer care for people with dementia: A webinar and research article

Hi everyone :) I thought I’d share some recent research about cancer care for people with dementia that might be of interest to people on this dementia and cancer forum. The study was conducted by researchers at the Centre for Dementia Research at Leeds Beckett University, and the research team...

forum.alzheimers.org.uk

 

[Shedrech]

Managing cancer-related care or treatment for your loved one with dementia​

Managing cancer-related care or treatment for your loved one with dementia

When caring for a person with dementia and cancer it can be challenging to encourage them to co-operate with cancer-related care or treatment. We are sharing some experiences from carers of people with dementia and cancer. They spoke of difficulties including getting their loved one to...

forum.alzheimers.org.uk

 

[ythomasshelb]

Caring for a person with a stoma and dementia? ColostomyUK have created a short guide of hints and tips that may be helpful.


Best wishes,
Mollie

Thankyou it was really helpful. we are a joint and lately my aunt is showing these symptoms. We were not aware about it at first but now it is being taken seriously... I will follow through the guide and come in case I have any queries, thanks again.

 

[RuthS]

Hi, not sure if I am posting correctly, but my Dad has dementia and cancer. Up until now, we have been coping, but Dad has just had some treatment, which has really affected his dementia and at the moment, we are not sure we are going to get him back to a functioning state. Anyway, I was looking for help about the interaction between cancer drugs and dementia, since, as things stand at the moment, we would be very reluctant for Dad to have any more treatment, without knowing the likelihood of the effect on his dementia. Any help / advice would be welcome. In the meantime, I will keep searching. Thanks, Ruth