Those Immortal words
“Nothing More Can Be DONE,
Yesterday I saw my consultant, yesterday I poured my heart out to him and Jan my Community Phcych Nurse, yesterday I asked for more help for Elaine,
“Yesterday, I admitted I was getting worse”
Those are words I thought I would never thought I would ever hear leaving my lips. Yesterday was such a day of mixed emotions as I almost shouted at them I would NEVER be beaten by this horrific Disease!! And yet, in gentle tones I begged for more to be done for Elaine to help her and I also asked, what was a LIFETIME FIRST for me, I asked for more medication. Only to be told that I was at the limit for Ebixa Intake, and also Exelon followed by the immortal words
“On the medication front, there is nothing more that can be done!!!”
It was like a thunderbolt from the blue, my heart sank so far and I almost felt as if my fight was ebbing away from me, seeping out of every pore. I have always thought there would be more medication to come, more that could be done, but NO.
This was swiftly followed up by “But there are medications that are being tested and MIGHT be available in a few years. I believed what they said, even though part of me did think they were just saying this to make me feel a little better because of the look of absolute desperation on my face. I have been fighting Dementia for 5 years now since being diagnosed and I am nobody’s fool. I lost both my father and wonderful grandmother to this disease so I am fully aware and at peace with my fate unless they find a cure, but that doesn`t help in the slightest when your told you are at the limit of your medication and its in the lap of the Gods from now on.
As far as the medication to keep me well is, I am at the end of the line! There, I’ve said it!!!!! BUT, and as you know there is always a very big BUT with me !! Does this mean I am giving up? Does this mean I will just ACCEPT my fate and fade away and await my ending?
WHAT DO YOU THINK!!!!
Like a boxer, I may have lost this round, but there is still a fight to fight, there are still many more rounds to go, and whilst I have hope in my heart and breath in my body, words at my fingertips and new ideas in my mind I will never giver give up!!
That’s a promise!!
Best wishes, Norrms and family xxxxxxxxxxx
“Nothing More Can Be DONE,
Yesterday I saw my consultant, yesterday I poured my heart out to him and Jan my Community Phcych Nurse, yesterday I asked for more help for Elaine,
“Yesterday, I admitted I was getting worse”
Those are words I thought I would never thought I would ever hear leaving my lips. Yesterday was such a day of mixed emotions as I almost shouted at them I would NEVER be beaten by this horrific Disease!! And yet, in gentle tones I begged for more to be done for Elaine to help her and I also asked, what was a LIFETIME FIRST for me, I asked for more medication. Only to be told that I was at the limit for Ebixa Intake, and also Exelon followed by the immortal words
“On the medication front, there is nothing more that can be done!!!”
It was like a thunderbolt from the blue, my heart sank so far and I almost felt as if my fight was ebbing away from me, seeping out of every pore. I have always thought there would be more medication to come, more that could be done, but NO.
This was swiftly followed up by “But there are medications that are being tested and MIGHT be available in a few years. I believed what they said, even though part of me did think they were just saying this to make me feel a little better because of the look of absolute desperation on my face. I have been fighting Dementia for 5 years now since being diagnosed and I am nobody’s fool. I lost both my father and wonderful grandmother to this disease so I am fully aware and at peace with my fate unless they find a cure, but that doesn`t help in the slightest when your told you are at the limit of your medication and its in the lap of the Gods from now on.
As far as the medication to keep me well is, I am at the end of the line! There, I’ve said it!!!!! BUT, and as you know there is always a very big BUT with me !! Does this mean I am giving up? Does this mean I will just ACCEPT my fate and fade away and await my ending?
WHAT DO YOU THINK!!!!
Like a boxer, I may have lost this round, but there is still a fight to fight, there are still many more rounds to go, and whilst I have hope in my heart and breath in my body, words at my fingertips and new ideas in my mind I will never giver give up!!
That’s a promise!!
Best wishes, Norrms and family xxxxxxxxxxx