1. Our next Q&A session is on the topic of Christmas and dementia.This time we want our Q&A to involve our resident experts, you! Share tips and advice on navigating Christmas here in this thread.

    Pop by and post your questions or if you prefer you can email your question to us at talkingpoint@alzheimers.org.uk and we'll be happy to ask them on your behalf.
  1. Sez77

    Sez77 Registered User

    Feb 26, 2017
    2
    Hi all. My first time on here. My Mum has just been diagnosed with FTD. She lives with my Dad and I am close by caring along with raising my 2 boys.
     
  2. HillyBilly

    HillyBilly Registered User

    Dec 21, 2015
    1,947
    Ireland
    Hi and welcome to the lovely TP community!
    You've found the best place to seek info, advice, have a rant, whatever!
     
  3. Sez77

    Sez77 Registered User

    Feb 26, 2017
    2
    Thank you HillyBilly look forward to it!
     
  4. Shedrech

    Shedrech Volunteer Moderator

    Dec 15, 2012
    8,089
    Yorkshire
    hello Sez77
    a warm welcome - though I'm sorry to read of your mum's diagnosis, I'm really glad you came across TP so you can share your experiences with the folk here and we can all help each other out
    very best wishes to all your family
     
  5. lynnpc

    lynnpc Registered User

    Jan 24, 2017
    20
    Isle of Wight
    Hi Sez77, I am fairly new here and it's lovely how welcoming people are. You will find a lot of support on this site, I don't have a lot of advice at the moment as I am still learning but I have learnt a lot already just from reading. With Love, Lynn x
     
  6. canary

    canary Registered User

    Feb 25, 2014
    10,795
    Female
    South coast
    Hello sez and welcome to Talking Point.
    My husband has FTD. It does not affect his short-term memory but it does affect his behaviour and speech.
     
  7. Peirre

    Peirre Registered User

    Aug 26, 2015
    160
    Believe me the learning curve seems so steep, you think it's going to loop the loop.
    Take small steps, and make sure the basics (LPA, will, finances, care plan etc ) are put in place. Then if possible don't panic & don't wrap them in cotton wool, and let them be themselves.
     
  8. lynnpc

    lynnpc Registered User

    Jan 24, 2017
    20
    Isle of Wight
    Thanks for your advice Pierre I really appreciate it, I will make sure everything is in place asap. Hope all is going well for you. With Love, Lynn x
     
  9. Peirre

    Peirre Registered User

    Aug 26, 2015
    160
    My superman shirt I donned 3yrs ago is fading
     
  10. Amy in the US

    Amy in the US Registered User

    Feb 28, 2015
    4,619
    USA
    Hello, Sez, and welcome to Talking Point. I'm sorry to hear about your mother's diagnosis but hope you find support, help, and advice here on TP.

    The UK Alzheimer's Society has good information on their website, when you have the time and/or feel up to exploring. Some places you could start:

    Types of dementia: https://www.alzheimers.org.uk/info/20007/types_of_dementia

    Help with dementia care: https://www.alzheimers.org.uk/info/20046/help_with_care

    Caring for someone with dementia: https://www.alzheimers.org.uk/info/...tanding_and_supporting_a_person_with_dementia

    Other good advice is the Compassionate Communication guide, which I'll let someone else post a link to, because I can never find the one I like!

    There's a lot of good information here on TP if you have a read through current and older threads. Please always feel free to ask questions.

    Dealing with dementia is a steep learning curve but there is some help available.

    I hate to present you with a to-do list, but sooner rather than later, you will want to get some paperwork/administrative things taken care of (powers of attorney, attendance allowance, help with finances, et cetera; I will let the UK folks comment more specifically on these) as well as figure out what help and support will be best for your parents and you, both immediately, and in the future.

    One hard and fast rule dementia has taught me is ALWAYS accept help when it's offered, even if you don't think you need it. It's a marathon, not a sprint, and you need all the help you can get.

    Sending very best wishes to you and your family.
     
  11. lynnpc

    lynnpc Registered User

    Jan 24, 2017
    20
    Isle of Wight
    So sorry about your superman shirt Pierre, I have a Wonder Woman costume you could borrow if you like! x
     

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