Hi,
First Happy New Year to you!
My name is Aneta and I’m 46 years old. I live in Ontario Canada. Yes I know this is a UK site. But there seems to be more information in EU than here in Canada. So I am reaching out for help here as well as with my local Alzheimer's Association.
4 years ago I had a CT scan that came back as frontotemporal atrophy inappropriate for age and suspected aneurism. Went through the testing gambit for clots and heart attack/stroke. Was told that since I am showing no symptoms of dementia, that i am fine.
I asked for another scan back in October as I am finding difficulty with words. Forming sentences, remembering names of objects, talking around a word to describe what I mean. I know this is normal, but it is now impeding my ability to communicate at work with customers and I find myself very frustrated and angry.
In November 2019, i had a MRI and the results came back :
Impression:
1. Mild to moderate bifrontal temporal atrophy again visualized. Differential is broad and include frontal temporal dementia, Alzheimer’s disease, versus prior injury. Please correlate clinically. Neurology consult may be considered.
2. There are few scattered T2/flair hyperintensities in the periventricular and subcortical white matter, slightly more than expected for patients age. These findings could be secondary to small vessel vasculitis, ischemic changes, migrainous changes, or sequela of previous injury.
I do not have migraines - Dr. asked me that right away.
She also made a referral to a hospital for a Neurologist consult. Then forgot to send it.
I am also waiting on a comparison between the two scans by a radiologist.
I am struggling with the results of the MRI and need help. Dr. took me off work the week before Christmas due to my lack of coping and NOT KNOWING! I need to know!! I can handle things better if I know.
I know there is little know about frontotemporal dementia and no cure or meds to slow the progress.
I need help with getting a good doctor that specializes in this and maybe some trials. Hoping I can skip the line of months waiting for a neurologist appt. (If my dr ever sends the referral)
I am way too young (self pity here) and from what I read, the younger the fast the onset and death.
So if it really is semantic frontal temporal dementia (self diagnosed thanks to Dr. GOOGLE - lol ) I need help sooner rather than later.
To add to this, I am POA for my grandmother with Alzheimers - no one else in my family has it. Grandma is turning 90 in a month and was diagnosed 3 years ago.
Thank you and hope to speak to someone soon.
Aneta
First Happy New Year to you!
My name is Aneta and I’m 46 years old. I live in Ontario Canada. Yes I know this is a UK site. But there seems to be more information in EU than here in Canada. So I am reaching out for help here as well as with my local Alzheimer's Association.
4 years ago I had a CT scan that came back as frontotemporal atrophy inappropriate for age and suspected aneurism. Went through the testing gambit for clots and heart attack/stroke. Was told that since I am showing no symptoms of dementia, that i am fine.
I asked for another scan back in October as I am finding difficulty with words. Forming sentences, remembering names of objects, talking around a word to describe what I mean. I know this is normal, but it is now impeding my ability to communicate at work with customers and I find myself very frustrated and angry.
In November 2019, i had a MRI and the results came back :
Impression:
1. Mild to moderate bifrontal temporal atrophy again visualized. Differential is broad and include frontal temporal dementia, Alzheimer’s disease, versus prior injury. Please correlate clinically. Neurology consult may be considered.
2. There are few scattered T2/flair hyperintensities in the periventricular and subcortical white matter, slightly more than expected for patients age. These findings could be secondary to small vessel vasculitis, ischemic changes, migrainous changes, or sequela of previous injury.
I do not have migraines - Dr. asked me that right away.
She also made a referral to a hospital for a Neurologist consult. Then forgot to send it.
I am also waiting on a comparison between the two scans by a radiologist.
I am struggling with the results of the MRI and need help. Dr. took me off work the week before Christmas due to my lack of coping and NOT KNOWING! I need to know!! I can handle things better if I know.
I know there is little know about frontotemporal dementia and no cure or meds to slow the progress.
I need help with getting a good doctor that specializes in this and maybe some trials. Hoping I can skip the line of months waiting for a neurologist appt. (If my dr ever sends the referral)
I am way too young (self pity here) and from what I read, the younger the fast the onset and death.
So if it really is semantic frontal temporal dementia (self diagnosed thanks to Dr. GOOGLE - lol ) I need help sooner rather than later.
To add to this, I am POA for my grandmother with Alzheimers - no one else in my family has it. Grandma is turning 90 in a month and was diagnosed 3 years ago.
Thank you and hope to speak to someone soon.
Aneta