Hi Lyla, I'm so sorry to read what you are going through. Im in a similar situation to you. I was 26 when my mum was diagnosed. Just about to get married, have since had a beautiful little girl. It was everything me and Mum used to talk about. She was my best friend. She's now into her 6th year of Alzheimers and in a mental health hospital as apparently no care home would take her because she can be a little aggresive. Im struggling going to see her but feel so guilty when I dont. My mum was 53 when diagnosed. I dont understand how this can happen to people so young and why has it happened to us.... our family. Its so unfair. Like you say people are there for you but really dont understand what its like and although its lovely they ask 'How's your Mum' its like I want to scream 'well she's not getting any better' that question seems so pointless but I know they mean well. My dad is my hero too and its breaking my heart to see him crumble. He cared for my Mum for 5 years, I honestly dont know how he did it. they were together at 15 and should have had the rest of their lives together like your parents. Have been thinking of having counselling but found this site and maybe talking to people like yourself is better than talking to a stranger that has no idea what we go through. Big hugs to you xxx
I'm new to all of this. I didn't even know this site existed until I finally had the guts to google "young people who have a parent with dementia". I'm finding everything hard and I just feel like I have a hundred people around who can support me, but no one understands what it's like to have a mum in their early 50's with dementia.
I live in London and my parents live 3 hours away in the countryside. It's killing me. My dad is a hero and he loves my mum so much. I just feel so guilty I live far away but I know my mum (I guess what my mum would have said) is to do what I love. It's hard to explain.
She's just so ill now, it's like she's turned into a child.
My dad is amazing and I just feel sorry for him. It's horrible feeling sorry for your dad...
Is anyone else here going through something similar?
I would love to talk to someone who is... Xx