1. Expert Q&A: Benefits - Weds 23 October, 3-4pm

    Our next expert Q&A will be on the topic of benefits. It will be hosted by Lauren from our Knowledge Services team. She'll be answering your questions on Wednesday 23 October between 3-4pm.

    You can either post your question >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll be happy to ask them on your behalf.

I want to bring Ben home

Discussion in 'End of life care' started by Sad Scully, May 26, 2015.

  1. Sad Scully

    Sad Scully Registered User

    May 25, 2015
    8
    Southampton UK
    Hello all at talking point. Thanks for the advice about contacting Social services, which my sister did for me today. I want to bring my husband home from care home and the SS will start the (probably lengthy) procedure of getting assessments etc. I have been informed that my request for a special needs bed will be a long wait as hospital discharges get priority. I do appreciate this but as I feel I have so little time left with Ben that I am wondering if there are any charitable organisations that offer a loan of adjustable bed and air mattress. I don't have a clue where to start and would love to hear from anyone with the info that I need. Ben was in the Royal Navy for 25 years so if anyone has experience of the charities linked to the Armed Forces, that may be a good place to start. Please help me if you can.
     
  2. LYN T

    LYN T Registered User

    Aug 30, 2012
    6,968
    Brixham Devon
    I did google but nothing came up-perhaps others will have more luck.

    Does Ben's GP surgery have any access to OT services? That could be quicker if so. In the circumstances I would think they would rush a referral through.

    Take care and good luck

    Lyn T
     
  3. nitram

    nitram Registered User

    Apr 6, 2011
    19,039
    Male
    North Manchester
  4. Grannie G

    Grannie G Volunteer Moderator

    Apr 3, 2006
    69,594
    Kent
  5. barny

    barny Registered User

    Jan 20, 2006
    199
    Herts
    I didn't,t have any problem getting a electric bed for my mum when she was at home. I got it through the district nurses. The equipment all came from the medical loans. It was delivered and set up with a pressure relieving mattress, they also came and serviced it regularly. I think you must keep asking. If there is a nursing need for it they have a duty to provide it. I would ask for a manually handling assessment. If they find a need they must help you manage it with the right equipment and suitable training for you. The physio and OT were very helpful to me. Good luck.
     
  6. Kjn

    Kjn Registered User

    Jul 27, 2013
    5,835
    I really hope you get sorted soon sad scully to bring your Ben home .x
     
  7. chick1962

    chick1962 Registered User

    Apr 3, 2014
    11,280
    Female
    near Folkestone
    Hello , there is Saffa, the soldiers, sailors association and also the Royal legion. Phone no should be in phone book as I don't know where abouts you are . They are brilliant so plz contact them . I am sure they will help and can also put some pressure on the services. My heart goes out to you xxxxx


    Sent from my iPhone using Talking Point
     
  8. Sad Scully

    Sad Scully Registered User

    May 25, 2015
    8
    Southampton UK
    Thank you all for your help, it is really useful info. I will contact SSAFA initially and try the other suggestions as required. I definitely think that help from Local Authority varies depending on where you live - as with so much in life. I'll let you know how I get on. I am so glad to have found talking point as I have felt so isolated in the last couple of years dealing with the heartbreak of Ben's illness. Now I know I am not alone anymore.
     
  9. chick1962

    chick1962 Registered User

    Apr 3, 2014
    11,280
    Female
    near Folkestone
    Yes, plz do let us know how you are getting on :) thoughts are with you xxxx


    Sent from my iPhone using Talking Point
     
  10. nitram

    nitram Registered User

    Apr 6, 2011
    19,039
    Male
    North Manchester
    "I definitely think that help from Local Authority varies depending on where you live"

    As well as the post code lottery the fact that you are asking for equipment to enable you to move Ben from a care home to your home rather than equipment to enable him to stay at home could also slow things down.
     
  11. Aitchbee

    Aitchbee Registered User

    Nov 3, 2013
    87
    My sister and I brought Mum home from a nursing home earlier this year. We didn't have a problem getting equipment. Barny is right in saying that profiling beds and air-flow mattresses are obtained via the District Nurses. The occupational therapist (local authority) got the other equipment for us. Your GP should do the referral to district nurses. It is hard trying to get all the help you need but keep asking :eek:
     

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