Have been absent from TP for quite a while.
Dee declined very sharply after Christmas and it's been a roller coaster ride.
Those who know me will remember that I was very badly treated by Soc Services just before Christmas. Because I am self funding the S Worker refused point blank to help in a real emergency. In March I wrote a letter to the Complaints Officer of the County and had instant response. He came to see me the day he received my letter to apologise and he was followed by the appropriate Head of S Services, then I received a letter of apology saying the SW was wrong. Since then they have really tried to help and everything is being handled in a friendly manner.
So my message is: find the right person to complaint to and DO IT.
Also, get an assessment done and take time over it and don't pull any punches. Mine has just been done by the Alz Soc Support Officer who is permitted to do this in lieu of the Soc W and she was so helpful.
Dee is now spending two days a week in a Care Home (10 to 6pm), one day at the clinic for their respite day and am using an agency to help with toileting in the morning and for respite one afternoon each week. And will soon be having evening toileting as well. I am self funding but the Soc S have been as helpful as they can with some of the costs. And they covered my absence when seeing a consultant.
But unfortunately, Dee is v incontinent and can be difficult to deal with in some situations. However she remains a very nice person in those fleeting moments when she is not troubled by this dreadful disease.
Hope to come back to TP now that things are settling down again.
Best wishes to everyone,
Dee declined very sharply after Christmas and it's been a roller coaster ride.
Those who know me will remember that I was very badly treated by Soc Services just before Christmas. Because I am self funding the S Worker refused point blank to help in a real emergency. In March I wrote a letter to the Complaints Officer of the County and had instant response. He came to see me the day he received my letter to apologise and he was followed by the appropriate Head of S Services, then I received a letter of apology saying the SW was wrong. Since then they have really tried to help and everything is being handled in a friendly manner.
So my message is: find the right person to complaint to and DO IT.
Also, get an assessment done and take time over it and don't pull any punches. Mine has just been done by the Alz Soc Support Officer who is permitted to do this in lieu of the Soc W and she was so helpful.
Dee is now spending two days a week in a Care Home (10 to 6pm), one day at the clinic for their respite day and am using an agency to help with toileting in the morning and for respite one afternoon each week. And will soon be having evening toileting as well. I am self funding but the Soc S have been as helpful as they can with some of the costs. And they covered my absence when seeing a consultant.
But unfortunately, Dee is v incontinent and can be difficult to deal with in some situations. However she remains a very nice person in those fleeting moments when she is not troubled by this dreadful disease.
Hope to come back to TP now that things are settling down again.
Best wishes to everyone,
