I really don't know which way to turn can anyone help please

[Beannie]

Hi,

My husband has early onset Parkinsons Disease and early onset Alzheimers Dementia. He is currently in a residential home but things have reached crisis point and they are giving him 4 weeks notice to leave as they cannot deal with his aggression anymore and I have to go to the home this afternoon. They are contacting Social Services today to arrange for a new assessment and to give me help in finding a new home that can better cater for his needs. We pay £422.40 every 4 weeks towards his care and the Local Authority pay the rest. If the new home is more money will the Local Authority try and make us pay more? OH had a financial assessment last time and they agreed the amount he had to contribute. I know that I do not have to and neither will I disclose what money of my own I may or may not have.

I always knew this day would come but I feel so lonely and desperate and wish I wasn't here sometimes. I have had very bad experiences with our Local Authority and Iam dreading the pantomime that will inevitably now ensue. We are both only 64 and have been dealing with these horrendous disease for about 7/8 years now. I really don't know which way to now turn. Any help would be greatly appreciated.

 

[marionq]

Beanie I'm listening but not much help. Someone from your area will step in soon I'm sure. Stay strong.

Good wishes.

 

[nellbelles]

I don't know where in the east midlands you are but is there a local carers association?

I found my local carers association a real help when dealing with SS, they also had advocates one of who supported me incredibly at a face to face meeting with a CPN and 2 SW'.

Stay strong xx

 

[Izzy]

I'm so sorry to hear about your situation.

Would you consider phoning the Dementia Helpline? I'm sure it would be useful for you to talk to someone about this.

https://www.alzheimers.org.uk/info/20012/helpline?_ga=1.176255714.633075466.1464894815

The number is 0300 222 11 22

 

[Beannie]

I'm so sorry to hear about your situation.

Would you consider phoning the Dementia Helpline? I'm sure it would be useful for you to talk to someone about this.

https://www.alzheimers.org.uk/info/20012/helpline?_ga=1.176255714.633075466.1464894815

The number is 0300 222 11 22

Thanks Izzy I will give them a call shortly. Much appreciated.

 

[Beannie]

I'm so sorry to hear about your situation.

Would you consider phoning the Dementia Helpline? I'm sure it would be useful for you to talk to someone about this.

https://www.alzheimers.org.uk/info/20012/helpline?_ga=1.176255714.633075466.1464894815

The number is 0300 222 11 22

Hi Izzy have just rung them and they have been helpful and answered some questions.

 

[Beannie]

I don't know where in the east midlands you are but is there a local carers association?

I found my local carers association a real help when dealing with SS, they also had advocates one of who supported me incredibly at a face to face meeting with a CPN and 2 SW'.

Stay strong xx

Hi Nellbelles I will have the meeting with the home this afternoon and then maybe look at whether there is a local carers association in my area. Have also just rung the Dementia helpline and they were able to answer some questions.

 

[Izzy]

Hi Izzy have just rung them and they have been helpful and answered some questions.

Ion I'm so glad.

 

[Izzy]

Hi Izzy have just rung them and they have been helpful and answered some questions.

Oh I'm so glad.

 

[Clunchman]

Just wondered if the link below would help?

http://www.carersuk.org/

 

[Marie Rose]

Hello Beannie,
I just posted a very similar problem.
I hope you have had a positive meeting this afternoon.
Has the CMHT been involved so far? It really should be their responsibility now.
Do not agree to bring him home.
Please let me know how you get on.
I will keep you posted as well.
Virtual hugs
Marierose

QUOTE=Beannie;1397207]Hi,

My husband has early onset Parkinsons Disease and early onset Alzheimers Dementia. He is currently in a residential home but things have reached crisis point and they are giving him 4 weeks notice to leave as they cannot deal with his aggression anymore and I have to go to the home this afternoon. They are contacting Social Services today to arrange for a new assessment and to give me help in finding a new home that can better cater for his needs. We pay £422.40 every 4 weeks towards his care and the Local Authority pay the rest. If the new home is more money will the Local Authority try and make us pay more? OH had a financial assessment last time and they agreed the amount he had to contribute. I know that I do not have to and neither will I disclose what money of my own I may or may not have.

I always knew this day would come but I feel so lonely and desperate and wish I wasn't here sometimes. I have had very bad experiences with our Local Authority and Iam dreading the pantomime that will inevitably now ensue. We are both only 64 and have been dealing with these horrendous disease for about 7/8 years now. I really don't know which way to now turn. Any help would be greatly appreciated.[/QUOTE]

 

[Beannie]

Hello Beannie,
I just posted a very similar problem.
I hope you have had a positive meeting this afternoon.
Has the CMHT been involved so far? It really should be their responsibility now.
Do not agree to bring him home.
Please let me know how you get on.
I will keep you posted as well.
Virtual hugs
Marierose

QUOTE=Beannie;1397207]Hi,

My husband has early onset Parkinsons Disease and early onset Alzheimers Dementia. He is currently in a residential home but things have reached crisis point and they are giving him 4 weeks notice to leave as they cannot deal with his aggression anymore and I have to go to the home this afternoon. They are contacting Social Services today to arrange for a new assessment and to give me help in finding a new home that can better cater for his needs. We pay £422.40 every 4 weeks towards his care and the Local Authority pay the rest. If the new home is more money will the Local Authority try and make us pay more? OH had a financial assessment last time and they agreed the amount he had to contribute. I know that I do not have to and neither will I disclose what money of my own I may or may not have.

I always knew this day would come but I feel so lonely and desperate and wish I wasn't here sometimes. I have had very bad experiences with our Local Authority and Iam dreading the pantomime that will inevitably now ensue. We are both only 64 and have been dealing with these horrendous disease for about 7/8 years now. I really don't know which way to now turn. Any help would be greatly appreciated.

[/QUOTE]

Hi marierose thanks for your response Iam sorry you are in a similar position to me it is horrendous isnt it? Excuse my ignorance but what is CMHT? I won't be bringing him home couldn't cope with him here anyway. You let me know how you get on as well.