i keep hearing voices

Discussion in 'I have dementia' started by muriel67, Jun 25, 2015.

  1. muriel67

    muriel67 Registered User

    Apr 10, 2014
    44
    can someone help me with my problem,I keep hering voices coming from the other bedroom,mostly at night ,sometimes during the day too.no one else can hear them,i don't no what they saying .it sounds like someones in the flat,but I cant find anyone.i told my doctor today and she just nodded and smiled but couldn't help.then when it happened when my friend was here we went to look for the noise but couldn't find it.i feel really silly but I know what im hearing.its very scary sometimes.
     
  2. jenniferpa

    jenniferpa Volunteer Moderator

    Jun 27, 2006
    39,438
    Well that wasn't very helpful of your doctor was it? I think I would go back and say: I'm experiencing auditory hallucinations. I know they aren't real but they are causing me a great deal of distress. Can you suggest a medication that might help me?

    Do you have anyone to advocate for you and make it clear to your doctor how distressing you are finding this?

    I'm not saying that is there is any medication that would help, but your doctor dismissing it like this is no help either.
     
  3. Lindy50

    Lindy50 Registered User

    Dec 11, 2013
    5,239
    Cotswolds
    Dear Muriel, I am sorry you are having this problem, it must as you say, be very scary.

    I agree with Jennifer, I think it would be a good idea to go back to your doctor. Or talk to a nurse if you are seeing one.

    I do hope you get some help with this soon.

    All the best :)

    Lindy xx
     
  4. Kevinl

    Kevinl Registered User

    Aug 24, 2013
    4,776
    Salford
    Hi Muriel
    I'm surprised your doctor didn't have you take a hearing test. If your hearing is going down hill a bit then the "voices" you're hearing may be from outside (it's summer so are your windows open?), next door's TV on a bit loud or any number of things.
    If (and it is only an if) you've lost some hearing then it may be that the "voices" you're hearing are other noises but you can't hear them well enough for your brain to instantly recognise them the way it used too. When like now my wife (she has AZ) is in bed every car door slamming outside sounds like she's fallen out of bed, people walking and talking past in the street because the front window is double glazed and the kitchen window is open sound like they're in my kitchen.
    It's only a thought but a hearing check might be a starter.
    K
     
  5. Chrismitch

    Chrismitch Registered User

    Jun 23, 2011
    127
    Hello Muriel,
    Please don't wait any longer before going back to your GP. Ask for an assessment. Take a friend or relative with you if you can.
    My mum had auditory hallucinations which caused her a lot of stress. She has been taking medication for some time now and she's absolutely fine. Do get some help as soon as you can.
     
  6. Gigglemore

    Gigglemore Registered User

    Oct 18, 2013
    526
    British Isles
    Another member, Creativesarah, posted a link to the radio programme below featuring a former GP who has dementia and describes some of the auditory hallucinations she had. It might be interesting for you to hear her experiences. Warning - they added some of the sounds to the soundtrack of the programme and I really jumped when one of them was the loud buzzing of bees.

    http://www.bbc.co.uk/programmes/b05zky7d

    Hope you get a more helpful response from your next visit to the GP. Take care.
     
  7. muriel67

    muriel67 Registered User

    Apr 10, 2014
    44
    sometimes its all a bit too much

    Hi everyone thankyou for your replies,I think im having a bad couple of days and that's why its getting me down,I have another apt with different doc tomorrow I might get somewhere then.I would feel better if I could talk to my daughter but lately shes finding it hard to deal with my odd ways and I don't want to stress her out any further.I do try tu understand she has got 4 children and 3 of them have special needs so shes very busy.Its the times when I get words wrong just little things that seem to push her over the top.Like she has met a lovely man who has a 5 year old daughter called Elin.I cannot get it to register in my brain her name isn't Helen.so I call her Helen without thinking.My daughter goes nuts saying mom its Elin then gets cross.Then I forget the name for things and the shovels the picker up and the phones the ringer.It does her head in.Yesterday I was sat in her car and she had cild locks on .I hadn't realised so couldn't get out.I asked my daughter to help She got back in the car flicked a switch without saying anything and I tried opening the door at the same time so it didn't work,Then she got out of the car cross again.Its all a bit too much we usually laugh at these things but lately its very hard being in one anothers company.I know shes finding it hard and if I could I would make it stop.I just want to close my doors and hide away.Im still me I still have feelings.I love my daughter so much and this is awful.
     
  8. muriel67

    muriel67 Registered User

    Apr 10, 2014
    44
    hi kevin ,I have had hearing tests over last 6 months .the voices and noises are down to my dementia according to my doc,its very scary when I think someones here and don't know where they are,
     
  9. Suzanna1969

    Suzanna1969 Registered User

    Mar 28, 2015
    346
    Essex
    Muriel bless you your last post has humbled me and made me feel very ashamed. I do find myself getting irritated with my Mum from time to time and although I try really hard not to show it I am sure she picks up on it. I am not the world's most patient person and with both Mum and Dad in such a bad way with their respective conditions sometimes the horrible situation makes me forget to be sensitive to their emotional needs. I took my parents out yesterday in the car and, as usual, Mum wasn't able to put her seatbelt on so I had to go in the back and do it for her. It does drive me a bit nuts because I'm also trying to get Dad safely in the front and it just adds to the stress. She is always apologising for everything and I feel awful for getting irritated.

    Having read your post I am going to try a lot harder.

    With regards to your daughter, part of the reason she is being snappy is that she is scared about what is happening to you, same as you are. With her stressful homelife as well she is probably closer to the edge and her upset is probably coming out like this. I bet she hates herself afterwards.

    You sound like you are very understanding of her problems and challenges which is wonderful. Hopefully she will be able to adjust soon and be the same for you. Maybe you could suggest going for a coffee when her kids are at school and tell her how you're feeling about things in a relaxed environment.

    Hopefully it will clear the air a bit and make you both remember you're still mother and daughter.

    Gonna ring my Mum now and tell her I love her.


    I will admit that my relationship with my Mum has always been a bit 'Awwww Muuuumm you're soooo embarrassing!' so this is kind of maintaining our 'unique' relationship! Probably best not to be like that now she has dementia though!
     
  10. muriel67

    muriel67 Registered User

    Apr 10, 2014
    44
    Suzana, you made me cry you sound so like my lovely daughter too.its so flippin hard to get it right isn't it.were all trying to not make things worse and try not to think to much about the future although in my family we have had a glimpse at it from looking after my mom who had this disease.i took my daughter for breakfast two days ago to chat but I kept winding her up . the hardest bit is we share a really good sense of humour and that usually gets us through but lately its not doing it.hug your mom tightly suzanna.
     
  11. Suzanna1969

    Suzanna1969 Registered User

    Mar 28, 2015
    346
    Essex
    #11 Suzanna1969, Jun 25, 2015
    Last edited: Jun 25, 2015
    Oh no please don't cry! You'll set me off! Have a big hug from me (((((((((((((Muriel))))))))))))))

    Mum's mum, my lovely Nanna, had it too. Doesn't bode well for me...

    That might be another reason your daughter is being a bit snappy... she's probably scared for herself too and yet feels selfish for thinking that.

    I know I am and do. :(
     
  12. Paulette395

    Paulette395 Registered User

    Jan 18, 2014
    35
    My dad had this

    It is good that you realise that these voices are not real. My dad believed they were. he was 89 and bereaved of my mum after 61 years of marriage. Not surprising he had problems!
    His medical investigations showed that although his dementia contributed, he was short of Potassium and needed thyroid treatment. He also didn't drink enough. When we regulated these things and reassured him he was much better. It wasn't cured but only came back at times of stress, heat-wave or when remembering hard times during the war-in other words trigger times. Hope this helps.
     
  13. tweetypie

    tweetypie Registered User

    Mar 16, 2012
    37
    I've got two ideas to try

    1 ear plugs - if they block out all other noise it may help make you realise that the voices are just in your head, no one in other rooms in your home and that might help reassure you at the time

    2 playing music - either in your room or through headphones or whatever you prefer to hopefully relax you and may help to possibly drown out the voices or change your concentration to something else. I found distracting my mum helped her sometimes in some instances, so this may be a bit of a distraction for you.

    I don't know if they'll work or not but I certainly hope they might do to bring some relief

    Take care x
     
  14. muriel67

    muriel67 Registered User

    Apr 10, 2014
    44
    Hi tweetypie,Ive been hearing a parrot all day today and its been driving me nuts,I start of looking for where the noise is coming from then when I cant find it I ignore it for a while,then I go back to looking for it because my brain has always told me if I can hear something its there.In the end I turned the tv up then turned it down and put the radio on instead. it just goes against everything that if theres a noise why cant I see whats making it.i saw my doc again and he said he doesn't want to put me on anything yet wich is fair enough ,he wants to see if it will just go away on its own.in the meantime im goin nuts.
     
  15. elmac

    elmac Registered User

    Oct 18, 2014
    2
    Auditory hallucinations

    An unfortunate part of Alzheimers - my mother has them - not as much now - she still has some but they are not always as frightening. The GP gave her some very mild tablets to relieve some of the anxiety. Many auditory hallucinations she gets now seem very pleasant ones! In America they are called the sundowners as they usually start when the sun goes down . They organise to pick up in the evening - take them to a centre play games knit have coffee and deliver them home in the morning after having an anxiety free night!
    Am sure your daughter is confused on how to cope with someone with Alzheimer's and to see your mother go through it is distressing. I have read up a lot on it - it helps to understand to some extent what you are going through and to discover methods of coping with various different situations as they arise. It is a natural instinct on most people's part to 'help' by correcting them but it makes it more difficult and confusing for you.
    My mothers had it for a number of years now - sometimes she's in her own world - I have a box of old memorabilia which whenever she gets anxious we go through the box talking about all the people events items of a time when she felt safe.
     
  16. Leolady56

    Leolady56 Registered User

    Aug 9, 2014
    44
    South Africa
    Re hearing voices...

    Hello Muriel - Shame on the Dr who just smiled but made no attempt to try to get to the cause of you hearing voices. :rolleyes: My own Mom is practically totally deaf - she can only hear me if I stand right in front of her - the TV has been turned off so that there are no other competing sounds and I then speak loudly and clearly and she can then hear me. She also went through periods when she would say that she could hear a lawnmower outside in the garden - (there was no lawnmower) and she would also complain that the building cleaning staff were speaking so loudly in our corridors and that I should speak to them to speak more quietly to one another. (there was no sign of any cleaning ladies in the corridor) I took her to her Geriatric specialist who said that hearing voices in patients with AD often occurs when they are feeling very stressed. He did prescribe 2mg's of Valium for Mom to take in the late afternoon (she goes into the 'sundowning' phase after 4 in the afternoon when the sounds seem to occur. I DID notice that the voices and other sounds which she reported hearing totally disappeared once she was put onto the Valium. But it had so many other not so nice side-effects in Mom's case that I stopped with the Valium but I try to not let her watch any 'busy' or stressful programs on TV from about 2 in the afternoon - I play soothing music which she used to love when she was much younger. I no longer put the main overhead chandelier on when it gets dark and only have soft, side lamps on and it has made a HUGE difference! I believe it might be stress related in your case too as you must be feeling the tension in your daughter who does not quite know how to react to your illness and I know I, who do not have AD - with the slightest bit of stress in my life - my hearing tends to greatly increase, I get buzzing sounds in my ears, my head starts to feel foggy and if a neighbour comes home and bangs their front door behind them - to me it sounds as if 20 doors are being slammed at the same time. So it's easy to see just what side-effects stress can have and according to Mom's specialist, one of the most commonly reported problems are the magnification of noises in AD folks.

    I don't know if you would be willing to try Valium - if your Dr is in agreement with it. (I stopped giving it to Mom because I found that she seemed to back slide in the AD dept quicker while on Valium) but then not everyone reacts the same.

    I sometimes give Mom a finger high mini shot glass of wine when we get close to her Sundowning time and she then also does not seem to hear any noises or voices at all. I am *not* advocating alcohol at all but am simply saying what has helped to keep mom from hearing things which are not there.

    I really feel for you because the last thing you need is to have someone be short or snappy with you - it's a shame that this is happening but then I also think that your daughter does not quite get how her reactions hurt you and stress you out.

    Sending you warmest hugs

    Colette xoxo
     
  17. edwardbs

    edwardbs Registered User

    Jul 30, 2014
    19
    Lichfield Staffs
    the noises work like tinnitus they will not hurt you.
    that is very important they are not telling you to do things
    you will not murder anyone that is a different thing
    do NOT listen for them when you hear them ignore them
    think oh it is just those noises and put the radio on or tv
    do not sit in silence. teach your brain to ignore them AND get your ears checked it might be them
     
  18. morph

    morph Registered User

    Apr 14, 2012
    5
    Hi Muriel,
    Most of my 50+ friends with 70+ Mums get really angry with them and try desperately to hide it. Meanwhile the Mum gets upset and tries to hide it....

    Both my Mum and my Aunt suffered from mental confusion and forgetfulness - with both of them I was able to discuss all the FEELINGS that we were struggling with and this helped so much. We had a lot of fun together and enjoyed each other's company.

    If you had severe arthritis you would not expect you to walk fast or do too much in one day. Why do we all expect confused people to perform the same as they always used to? Your brain is working more slowly and less effectively but you are doing your best - talk to your daughter about what you feel, what she feels, and how you can best move forwards and enjoy the time you have together....
     
  19. muriel67

    muriel67 Registered User

    Apr 10, 2014
    44
    #19 muriel67, Jul 3, 2015
    Last edited: Jul 3, 2015
    Hi Edward,The problem is this.When I hear a noise like people talking to me ,a baby crying ,the tv, a loud noise somewhere ,I still have the normal response to want to pay attention to that noise.Thats how we communicate.I have heard people talking in my bedroom when no ones there and the flippin parrot yesterday.At first it was so scary because I was alone at night and the voices were strange unknown voices.I had to keep checking all day yesterday for the parrot because the windows were open and I thought one might have got in.It isn't a choice to not listen its human nature to do that and also human nature to want to look .My friend has been with me when this happens and she cant hear it but that doesn't tell my brain its not real.in my previous posts I have said I had my ears checked too.At the time when its the voices how do I know they wont harm me they are strange voices in my flat.Please don't take offence at my post I just want to say how it is from my side:)
     

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