I have Lewy Body Dementia

Discussion in 'I have dementia' started by Dennisthehorse, Jul 11, 2019.

  1. Dennisthehorse

    Dennisthehorse New member

    Jul 9, 2019
    2
    Hello. I was diagnosed with Lewy Body Dementia in Oct 2018. I am new to the group. It would be useful to link in with others in the same situation. I am feeling really sad today following double incontinence. I need a mattress cover that doesn't make me sweat. I am currently using the padded pants but when I turn in my sleep they leak.

    Currently I spend many many hours asleep through the day. Does anyone else find this? I still sleep at night and frequently visit the loo.

    I look for a timeline for the degeneration of my health, not because I am excited by it but because I need a handle for the future.

    Oh by the way, Dennis is my tourney horse. I used to be very involved in Morris dancing and turned to Dennis the Horse to carry me around. (Carer comment - this is true)

    Thank you for your time
     
  2. Cat27

    Cat27 Volunteer Moderator

    Feb 27, 2015
    10,070
    Merseyside
    I just wanted to say welcome to DTP @Dennisthehorse. You’ll get lots of support here.
     
  3. Grannie G

    Grannie G Volunteer Moderator

    Apr 3, 2006
    69,128
    Kent
    Hello Dennisthehorse

    I`m sorry you're feeling so low but it's not surprising when you have so much to face.

    There are carers and people on the forum with Lewy Body Dementia and I hope when they come on line they`ll see your post and connect with you.

    I might be able to help with a mattress cover which won`t make you sweat. I bought this one.

    https://www.marksandspencer.com/qui...f-mattress-protector/p/p22476628?prevPage=srp
     
  4. nitram

    nitram Registered User

    Apr 6, 2011
    18,830
    Male
    North Manchester
    There is a member @Norrms who has LBD and regularly posts.
    You can read his posts >>>here<<<
    As I have tagged him in this post he may reply to this thread or contact you by 'conversation' - private messaging between members. If he does you should get a flag alert and , depending on settings, an email.
     
  5. LynneMcV

    LynneMcV Volunteer Moderator

    May 9, 2012
    3,460
    south-east London
    A welcome from me too @Dennisthehorse ,

    Re. the issue you raised about a mattress cover that doesn't make you sweat, I found that terry towelling waterproof mattress covers worked best for my husband.

    They don't rustle noisily like a lot of waterproof bedding products do - and the towelling side was both comfortable to sleep on and he didn't overheat at all

    I purchased ours online. Several companies produce them and they come in all bed sizes. Just Google terry towelling waterproof mattress protectors and you should find some helpful links.

    I hope that helps a bit.
     
  6. Dennisthehorse

    Dennisthehorse New member

    Jul 9, 2019
    2
    Thank you to everyone for their comments and ideas. We have just worked out that it is an Ikea bed and mattress so not standard size. They do do a mattress cover so we are going to try that. (Carer)
     

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