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I have early stage Alzheimer's and mixed vascular dementia

jwr

Registered User
Jan 10, 2021
16
0
I have early stage Alzheimers and mixed vascular dementia!
I am ok except for osteoarthritis, heavy sweating night and day! My husband does everything for me and our home! He is my hero and never want to be without him!!
I am so tired and fatigued since recently having a small stroke!
I don’t know how long before I progress to next stage!! ? I don’t want to live any longer but don’t know what to do! I am only suffering short term memory and can do most things personally! Any hope please help!!! ?
 

Sarasa

Volunteer Host
Apr 13, 2018
3,904
0
Hi @jwr and welcome to Dementia Talking Point. This is a very friendly place and you'll get lots of help and support here.
Do you have any help other than your husband? It might be worth contacting social services to see what help might be available. You may not need it just yet, but it's worth getting things sorted out in advance.
 

Shedrech

Volunteer Moderator
Dec 15, 2012
10,946
0
Yorkshire
hi @jwr
what a star your husband is
I'm sorry you feel so bad, and hope you're able to chat with your husband and friends
it may help to call the lovely advisors on our support line as they are very approachable and have a lot of knowledge about ways to help
keep posting - we may not be able to solve every issue but we're here to share experiences
 

HardToLetGo

Registered User
Oct 10, 2020
44
0
I have early stage Alzheimers and mixed vascular dementia!
I am ok except for osteoarthritis, heavy sweating night and day! My husband does everything for me and our home! He is my hero and never want to be without him!!
I am so tired and fatigued since recently having a small stroke!
I don’t know how long before I progress to next stage!! ? I don’t want to live any longer but don’t know what to do! I am only suffering short term memory and can do most things personally! Any hope please help!!! ?
Hello, you and your husband sound like a very close and happy couple, I'm sure he does not want to lose you and all the moments together still to come. I am thankful for the moments we still have with my Mum and I know she is too. I don't know how it feels to have dementia but I hope the love can shine through. Keep posting 🌸
 

DesperateofDevon

Registered User
Jul 7, 2019
3,279
0
Hello lovely, firstly please note everyone’s dementia journey is unique. You can be pro active & make decisions now about your care & treatment. Make memories everyday & enjoy life it’s very precious. No one knows what tomorrow will bring, speak to your GP & dementia team; ask for help now.

we are all on this life journey together
((( hugs)))
 

Cazcaz

Registered User
Apr 3, 2021
176
0
I have early stage Alzheimers and mixed vascular dementia!
I am ok except for osteoarthritis, heavy sweating night and day! My husband does everything for me and our home! He is my hero and never want to be without him!!
I am so tired and fatigued since recently having a small stroke!
I don’t know how long before I progress to next stage!! ? I don’t want to live any longer but don’t know what to do! I am only suffering short term memory and can do most things personally! Any hope please help!!! ?
My mum was diagnosed with early stages Alzheimer’s in March this year. She too is worried what the future will bring.

But she has decided to live, rather than worry. While she can’t do much at home (eg cook/write cards to family/shop). She is determined to do what she can while she can.

That is an outlook that seemed impossible for her just a couple of months ago when she too was feeling helpless and worrying about things getting worse.

what I’m trying to say is that if you’re newly diagnosed, you will feel more positive soon. Don’t let the thoughts of “I don’t want to live“ take over. You still have a long time to enjoy with your husband. This early stage can last a long time. So enjoy it! Go places you like, take photos he can show you even after you’ve forgotten, enjoy meals out. Remember you’re making memories for HIM too, this is precious time, don’t waste it in depression.
 

Grannie G

Volunteer Moderator
Apr 3, 2006
74,655
0
Kent
Hello @jwr

I`m with your feelings 100% and I`m sure would feel the same fear if I had the diagnosis.

Sadly, it is what it is. No one knows what could be on the horizon and what is so important is not what we have to face but how we face it.

Your husband is doing all he can to make life as good as possible for you and having been in his shoes I know he will be as heartbroken as you are about your diagnosis.

Please work together to make the best of your time. No one knows how the dementia will develop and the early effects you are living with now are manageable. If you can possibly live in the moment, taking each day as it comes, you could have the best quality time together which I feel sure would help you mentally, physically and emotionally.
 

Knitandpurl

Registered User
Aug 9, 2021
62
0
Lincolnshire
Hi My husband has dementia, in March he took suddenly ill with a urinary tract infection and suspected heart attack. He was in hospital for a week, which was dreadful for both of us - BUT, and this is the point I want to make - I missed him as much as he missed me. He is not the same as he used to be, but neither am I , and I still need him and want him, as he is now, just as much as he wants and needs me. Try and be happy you are still here and enjoy the time you have now, with your lovely husband. He wants you to be happy, that makes him happy. Xxx
 

yourbestjudy

New member
Sep 30, 2021
4
0
I have early stage Alzheimers and mixed vascular dementia!
I am ok except for osteoarthritis, heavy sweating night and day! My husband does everything for me and our home! He is my hero and never want to be without him!!
I am so tired and fatigued since recently having a small stroke!
I don’t know how long before I progress to next stage!! ? I don’t want to live any longer but don’t know what to do! I am only suffering short term memory and can do most things personally! Any hope please help!!! ?
This sounds like such a difficult time for you and your husband but it's terrific to hear that you have support at home. It is possible to live well with dementia and to have loving, happy and some fun times too. I hope you can experience some of these and are able to share your thoughts, worries and anxieties with your husband. I think it's so important to keep talking and to let people know what you need.