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Hi there. My wife has vascular dementia and I am her only support. The family are too busy! I am lucky in that my wife is not violent/aggressive and she sleeps an awful lot of the time. Her only joy is watching old programmes on TV. I love watching her smile whilst she is watching programmes. It makes the effort seem worthwhile. As long as I can keep her comfortable I believe that I am doing my best. But isn't it tough. I constantly have to remind myself that the illness is not her fault. We live a very simple life now and I pray that I keep relatively fit and healthy. Good luck to you.I don't think I've support off my own family, we'll it feels like that too me
Just wanted to offer sympathy, Richard. Have you tried ringing the Dementia Helpline to see if they can offer advice about who you could speak to? Does your local hospital have CPNs (psychiatric nurses) who could visit and listen to how you feel. Try to find out what the facilities are in your area - maybe there is a day centre or counselling service or your GP can offer advice. I do hope you can get some help. You shouldn't have to go through this alone.Dear Friend.
I think I know what you going through. I have been diagnosed with Vascular Dementia and feel like I am going mad. I have ask to talk to phychiatis or someone like this, but I just go around in circles. I'm lost and so frigthened of what is happening to me!
My name is Richard.
Yes, that makes complete sense. It's a sensible thing to do. Can I suggest that you keep a note book of what people tell you - doctors and people who are able to help? You can always ask them to write it in your book for you. Keep it in a bag and take it with you.Thank you Nita. My GP said he was write to some body. but not sure. it was suggested a dementia cafe, but thinking of being in group is worrying. I want to no if what i feel see here are ok, but do not no how to takl about it. does that make sense.
Talking is good so keep posting, as others have said speaking to the helpline would be a good start. Sorry you haven’t got support from your family maybe they are in denial and don’t want to think anything is wrong see if you can have a heart to heart talk with them in how you feel xxI have dementia and needs to talk to someone