I am tired today and developing a cold and expect that's why I am so fed up and sad 
One of the many things about AZ that I find hard is the way things keep changing. And now it's all happening quickly again.
My OH who is 86 and 14 years older than me, had no symptoms until just over 3 years ago.
the next year I got a bit concerned but still was able to leave him coping fine on his own while I visited family in Australia for 4weeks
early last year we went to the memory clinic, and got the diagnosis. He was still himself and doing nearly everything
Since then the rate of change has been frightening. He was refused by a local day centre last summer as too high a need level for them, he became incontinent and much less mobile as his balance became poor. His behaviour was noticeably odd, hard for family to accept, and causing unwanted attention while out. He couldn't any longer be safely left as would just sit and do nothing, not eat drink or move without prompting. Thankfully with a specialist day centre twice a week, and some carer input we got through to this summer.
But since May it all seems to be accelerating. He had pneumonia in June, caused by swallowing difficulties, and has been weaker ever since, no more day centre as too tired for a day there. He has puréed food but still got another chest infection only a couple of months after he came out of hospital. Last month he became increasingly tired and weaker, and developed erratic breathing at night. We are waiting for an appointment at the sleep clinic though I am told they are unlikely to be able to help.
This week he has been reluctant to get out of bed each morning, and taken until midday to feel like eating anything, though thankfully he will still drink well. He has alsorefused to go out even for short periods until today. A beautiful sunny day so off to the local garden centre to enjoy soup there and I find he cannot remember how get into the car. He was frightened as he thought he was falling, despite having his walker and my arm to support him. And a couple of times his legs seemed to be on the verge of collapsing under him. He did enjoy it, but was ever so glad to come home and has slept ever since.
He has had recent blood tests X-rays, urine tests etc and shows no sign of an infection currently. So I guess this is the new normal. I hate this disease and what it is doing to him.
One of the many things about AZ that I find hard is the way things keep changing. And now it's all happening quickly again.
My OH who is 86 and 14 years older than me, had no symptoms until just over 3 years ago.
the next year I got a bit concerned but still was able to leave him coping fine on his own while I visited family in Australia for 4weeks
early last year we went to the memory clinic, and got the diagnosis. He was still himself and doing nearly everything
Since then the rate of change has been frightening. He was refused by a local day centre last summer as too high a need level for them, he became incontinent and much less mobile as his balance became poor. His behaviour was noticeably odd, hard for family to accept, and causing unwanted attention while out. He couldn't any longer be safely left as would just sit and do nothing, not eat drink or move without prompting. Thankfully with a specialist day centre twice a week, and some carer input we got through to this summer.
But since May it all seems to be accelerating. He had pneumonia in June, caused by swallowing difficulties, and has been weaker ever since, no more day centre as too tired for a day there. He has puréed food but still got another chest infection only a couple of months after he came out of hospital. Last month he became increasingly tired and weaker, and developed erratic breathing at night. We are waiting for an appointment at the sleep clinic though I am told they are unlikely to be able to help.
This week he has been reluctant to get out of bed each morning, and taken until midday to feel like eating anything, though thankfully he will still drink well. He has alsorefused to go out even for short periods until today. A beautiful sunny day so off to the local garden centre to enjoy soup there and I find he cannot remember how get into the car. He was frightened as he thought he was falling, despite having his walker and my arm to support him. And a couple of times his legs seemed to be on the verge of collapsing under him. He did enjoy it, but was ever so glad to come home and has slept ever since.
He has had recent blood tests X-rays, urine tests etc and shows no sign of an infection currently. So I guess this is the new normal. I hate this disease and what it is doing to him.
