Hi
My dad had early on-set FTD (PICKS) and I recently had the test to see if I carried the MAPT gene and discover whether or not I'd inherit the disease.
Although it was 50/50 as to which gene I had inherited from my dad- the good one that he'd received from his dad (my granddad who is soon to be 90 years old) or the dominant mutant gene from his mum who died in her early 50s- I am the first member of my family in years to have not inherited the disease; better than winning the lottery! However, it was a long drawn-out and emotionally challenging period of my life (and my husband's). I feared for what would my children's future would look like without me there, I pictured my house without me in it, but in a bid to save them going through the pain I had experienced for 24 years, I decided that knowing was better than not knowing.
Whilst going through the test I was desperate to find someone who'd been through the same thing and could only find 1 lady's story. So I'm posting mine on here in the hope of supporting anyone else in the same position.
My dad had early on-set FTD (PICKS) and I recently had the test to see if I carried the MAPT gene and discover whether or not I'd inherit the disease.
Although it was 50/50 as to which gene I had inherited from my dad- the good one that he'd received from his dad (my granddad who is soon to be 90 years old) or the dominant mutant gene from his mum who died in her early 50s- I am the first member of my family in years to have not inherited the disease; better than winning the lottery! However, it was a long drawn-out and emotionally challenging period of my life (and my husband's). I feared for what would my children's future would look like without me there, I pictured my house without me in it, but in a bid to save them going through the pain I had experienced for 24 years, I decided that knowing was better than not knowing.
Whilst going through the test I was desperate to find someone who'd been through the same thing and could only find 1 lady's story. So I'm posting mine on here in the hope of supporting anyone else in the same position.