1. Expert Q&A: Benefits - Weds 23 October, 3-4pm

    Our next expert Q&A will be on the topic of benefits. It will be hosted by Lauren from our Knowledge Services team. She'll be answering your questions on Wednesday 23 October between 3-4pm.

    You can either post your question >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll be happy to ask them on your behalf.

I give up.......

Discussion in 'End of life care' started by BrianSausage, Jan 27, 2019.

  1. BrianSausage

    BrianSausage Registered User

    Nov 2, 2018
    29
    So after posting earlier, I called mums NH for an update this evening and she’s been alert most of the day and eaten lunch and supper!!!

    I am literally at my wits end. How can this be? She’s on a syringe driver and been asleep for 3 days and not eaten for 6 days!

    I’m angry that the NH haven’t kept me informed today. I asked to be called with any change!

    Nurse says it’s probably a rally.

    I’ve now at mums bedside and she doesn’t know me. She’s chatting away about nonsense. Can’t make any sense of what she’s saying really. She’s babbling. I can make out the odd word, and she appears to be having a conversation with someone.

    I think had to come over and see her as I couldn’t settle at home.

    I really thought this was the end for mum, but it seems not.
    I could cry for her, and me.
     
  2. Ostrich63

    Ostrich63 Registered User

    Jul 9, 2018
    27
    I think I would do just that go home have a bath and a cry. You know the further into this journey I go I realise that no one knows anything, and to expect nothing more than what happens. Hugs to you.
     
  3. Izzy

    Izzy Volunteer Moderator

    Aug 31, 2003
    59,590
    Female
    Dundee
    #3 Izzy, Jan 27, 2019
    Last edited: Jan 28, 2019
    Have that cry. Sometimes it's just what we need to do.
     
  4. canary

    canary Registered User

    Feb 25, 2014
    10,531
    Female
    South coast
    (((((((((((((((((((((((((((((((((hugs)))))))))))))))))))))))))))
    It happens more often than you would suppose. Its a terrible roller coaster.

    Have a cry, have a bath, go to bed, try and sleep.
    See what tomorrow brings
     
  5. Ostrich63

    Ostrich63 Registered User

    Jul 9, 2018
    27
    Thinking of you.
     
  6. Shedrech

    Shedrech Volunteer Moderator

    Dec 15, 2012
    8,022
    Yorkshire
    my heart goes out to you @BrianSausage
    and to your mum
    I hope you are able to relax tonight
     

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