Hello everyone,
Any words of wisdom or encouragement would be most welcome tonight...as I am taking my mum to care home tomorrow and feel so awful about it. I had promised myself and her that I would never ever do this, and feel I am totally letting her down now. Her AZ was diagnosed a year ago...and is rapidly progressing. The consultant says she is unlucky to have such a quick progression, which has not been helped by either Aricept or Ebixa (she had been taking them both together since diagnosis). She is in moderate stage now (was in early mild stage 6 months ago...and I was the only one then who knew something was wrong with her). She is behaving like an ALZ patient now, the disease is obvious to everyone who sees her, and is verbally abusive to the carers I have been employing to look after her at home. To make it worse, she is also bed bound due to severe osteoarthritis. Every time the carer tries to help with her private hygiene, etc. she screams and shouts with pain...but the words she utters are pure abuse. She apologises later...and is often in a state of a permanent panick attack. Carers have come and gone...I am so worried that if this situation continues with her being at home and not receiving good care...she will develop bed sores, start having breathing difficulties from being in bed all the time, etc. So, after long discussions with myself (I am an only child) and her doctors...I have decided to opt for a care home. My heart is so heavy with this decision...I had never imagined my mum would end up in this situation. But I feel she might be safer there if she gets professional care...and the home carers have been such a disappointment at times.
Any words of wisdom and perspective would be so welcome during this very distressing time.
Many thanks in advance to everyone who will take the time to respond.
Seasong
Any words of wisdom or encouragement would be most welcome tonight...as I am taking my mum to care home tomorrow and feel so awful about it. I had promised myself and her that I would never ever do this, and feel I am totally letting her down now. Her AZ was diagnosed a year ago...and is rapidly progressing. The consultant says she is unlucky to have such a quick progression, which has not been helped by either Aricept or Ebixa (she had been taking them both together since diagnosis). She is in moderate stage now (was in early mild stage 6 months ago...and I was the only one then who knew something was wrong with her). She is behaving like an ALZ patient now, the disease is obvious to everyone who sees her, and is verbally abusive to the carers I have been employing to look after her at home. To make it worse, she is also bed bound due to severe osteoarthritis. Every time the carer tries to help with her private hygiene, etc. she screams and shouts with pain...but the words she utters are pure abuse. She apologises later...and is often in a state of a permanent panick attack. Carers have come and gone...I am so worried that if this situation continues with her being at home and not receiving good care...she will develop bed sores, start having breathing difficulties from being in bed all the time, etc. So, after long discussions with myself (I am an only child) and her doctors...I have decided to opt for a care home. My heart is so heavy with this decision...I had never imagined my mum would end up in this situation. But I feel she might be safer there if she gets professional care...and the home carers have been such a disappointment at times.
Any words of wisdom and perspective would be so welcome during this very distressing time.
Many thanks in advance to everyone who will take the time to respond.
Seasong