My wife has been suffering with this dreadful disease for over 9 years ... we relocated a few years ago to be nearer friends and family which gave us much needed support. We also had to change consultant as a result of this relocation ..... the service we received was initially fantastic, however over the last 2 years the original consultant moved on and we have had 2 more since ..... we have been receiving visits from the nursing team who have been monitoring my wifes behaviours ...... her behaviours have been erratic and the consultant suggested a modification to medication, which was to reduce the aricept and increase memantine over time .... we are just 4 weeks into this modification, and received a visit from the nurse on Wednesday .... On Thursday I received a call from one of the nurses basically saying that there was nothing more they could do and was discharging my wife back to the GP ..... I rang to express my concern and was asked what more I wanted her to do ........ how do I know!! I don't understand the medication and its impacts .... all I know was we were modifying my wifes medication and that they have basically abandoned us half way through the process ... to top it off I went to collect my wifes prescription to find it had been adjusted without my knowledge and was different to what the nurses/ consultant had suggested!! I don't know what is going on other than the complete lack of understanding and empathy shown by the nurse I spoke to has left me emotionally drained , angry, and confused ... I feel so isolated and let down by the people who should know better!! Has anyone else had a similar experience? Apologies for the length of the post I just needed to 'vent' I will contact the GP on Monday to sort out my wifes medication and I am considering raising a grievance against the nurse in question!! They really should know better ... as carers, we live such an isolated life ... with precariously balanced emotions on a journey none of us can win .... surely we have right to expect 'the experts' to demonstrate some self awareness and to be aware of the possible impacts of their actions!! ..... not this nurse she left me in tears of frustration!!