Hello,
I'm new here just joined today so I'll give some background before I ask a question.
My mum was diagnosed nearly 3years ago with FTD she is now 55. She's since had her license revoked and cannot any longer work. I have one older sister and we now all live together.
Mum still won't admit that she has FTD to herself. I came out of work a year ago to become her full time carer. Over the past year I have seen a decrease in my mother, she of late is becoming very angry all the time. She mumbles about things every second of the day. Her moods are all over the place from laughing and loving to angry or uncontrollable crying and telling me she wishes she was dead. As her son this is hard to hear so often and as strong as a person I always was over the past year I'm finding its starting to beat me into the ground.
She seems to live off a few hours sleep a night and she's always up at the crack of dawn and if you don't get up just before her then she is in a terrible mood till late afternoon.
She has difficulty keeping herself clean and for the past couple of months my sister has had to stand in the bathroom with her telling her what comes next in the showering process, luckily we have each other to help out with different situations.
Now because I've seen the decline over the past year I'm starting to wonder at what point will it become too unmanageable that we can no longer care for her? There are days when she hates me and screams and cries all day long. If I'm honest I feel like I'm coming to the end of my teather and feel like a terrible son for not being able to cope any longer. My sister helps a lot but she works and we can't afford for us both to be out of work, We have a big family who have been extremely disappointing with help or even just a phone call to see how we and mum are doing. every day is becoming a struggle. We have to keep the doors locked at all times but then that makes her worse like a caged animal and then I feel like I'm causing even more unnecessary pain for her and have taken to leaving them unlocked and a coat near by to run out after her and follow her down the street. I'm hiding behind cars and phoning family ahead when I know where she's going so she doesn't see or hear me.
I feel like I'm stuck and I am loosing all hope. Is anyone else going through any of this? Isit just us? Or is there anything I can do?
She also has no attention span so doing things with her are over in a minute when she gets bored. Her concept of time is way out of the window, and first thing in the morning she thinks it's late at night and by dinner she's shouting about how it's ltr and no one is home.
Any help off anyone would be great, thank you.
I'm new here just joined today so I'll give some background before I ask a question.
My mum was diagnosed nearly 3years ago with FTD she is now 55. She's since had her license revoked and cannot any longer work. I have one older sister and we now all live together.
Mum still won't admit that she has FTD to herself. I came out of work a year ago to become her full time carer. Over the past year I have seen a decrease in my mother, she of late is becoming very angry all the time. She mumbles about things every second of the day. Her moods are all over the place from laughing and loving to angry or uncontrollable crying and telling me she wishes she was dead. As her son this is hard to hear so often and as strong as a person I always was over the past year I'm finding its starting to beat me into the ground.
She seems to live off a few hours sleep a night and she's always up at the crack of dawn and if you don't get up just before her then she is in a terrible mood till late afternoon.
She has difficulty keeping herself clean and for the past couple of months my sister has had to stand in the bathroom with her telling her what comes next in the showering process, luckily we have each other to help out with different situations.
Now because I've seen the decline over the past year I'm starting to wonder at what point will it become too unmanageable that we can no longer care for her? There are days when she hates me and screams and cries all day long. If I'm honest I feel like I'm coming to the end of my teather and feel like a terrible son for not being able to cope any longer. My sister helps a lot but she works and we can't afford for us both to be out of work, We have a big family who have been extremely disappointing with help or even just a phone call to see how we and mum are doing. every day is becoming a struggle. We have to keep the doors locked at all times but then that makes her worse like a caged animal and then I feel like I'm causing even more unnecessary pain for her and have taken to leaving them unlocked and a coat near by to run out after her and follow her down the street. I'm hiding behind cars and phoning family ahead when I know where she's going so she doesn't see or hear me.
I feel like I'm stuck and I am loosing all hope. Is anyone else going through any of this? Isit just us? Or is there anything I can do?
She also has no attention span so doing things with her are over in a minute when she gets bored. Her concept of time is way out of the window, and first thing in the morning she thinks it's late at night and by dinner she's shouting about how it's ltr and no one is home.
Any help off anyone would be great, thank you.