Hi everyone, had a very successful day, after an awful night. John was shaking and jerking all night. Temazepam did not seem to have settled him at all.
Took John to daycare this morning, very unsteady on his feet. They couldn't believe how much he'd deteriorated since last Friday, so it's not just me over-reacting.
Went to visit a care home that does respite. I hadn't visited it before, because I'd heard it was very scruffy. Yes, it is a bit scruffy inside. It's a listed building, set in it's own grounds, lots of walks. Most rooms are not ensuite, and are odd shapes, as they've been converted from larger rooms.
But I liked the atmosphere, much more friendly than all the modern, purpose-built homes. And the first person I saw was a friend of John's from support groups, who's been there for a few months. He looked well and happy, and he recognised me.
Social worker came this afternoon, & John's son came to support me. It was so good. I've been offered a full care package, with someone coming in morning and evening for washing, dressing and bed. Two days daycare and two sessions of Crossroads, more if I want it. And rolling respite, as much as I want.
I've booked John in to the home I saw this morning for two weeks from 9th Sept.
The only down point is that I haven't heard from the consultant with an appointment, but I don't think for a minute that there is anything he can do, so that's not the end of the world.
So you see, I did listen! Now I've just got to convince myself I'm doing the right thing!
Love to all,
