My husband went into care early April . He has fronto temporal dementia
He has lucid moments. I take him out a couple of times a week
He has dreadful hallucinations hearing things all part of ftd
Struggles to speak sometime lots of problems will the ftd
The lucid moments are killing me just now he asks if we can go out for a few hours why can't I go home for few hours . Sleep there. How has it come to this tells me to sort it as we worked all our life should be doing things I don't understand he says
He gets on to me to sort it all out I can't make it better. Got the terrible guilt around me .
I was at carer crisis point when he went in doctor was worried about me going under
I have cried buckets today don't know what to do what to say to him it no easier now he in care except that I not looking after him at home
Top and bottom is I suppose I can't say you can't come home
This bloody dementia it's not fair none of us deserve this
He has lucid moments. I take him out a couple of times a week
He has dreadful hallucinations hearing things all part of ftd
Struggles to speak sometime lots of problems will the ftd
The lucid moments are killing me just now he asks if we can go out for a few hours why can't I go home for few hours . Sleep there. How has it come to this tells me to sort it as we worked all our life should be doing things I don't understand he says
He gets on to me to sort it all out I can't make it better. Got the terrible guilt around me .
I was at carer crisis point when he went in doctor was worried about me going under
I have cried buckets today don't know what to do what to say to him it no easier now he in care except that I not looking after him at home
Top and bottom is I suppose I can't say you can't come home
This bloody dementia it's not fair none of us deserve this