Hello everyone, I hope you have managed to have a good Christmas with your loved ones as best you can given all our difficult circumstances.
Mum came back to our house Christmas eve day, and enjoyed herself drinking sherry and eating mince pies. She came for a full Christmas dinner on boxing day as we decided it would be better for her to come then, as we would not be rushing her and our young kids could enjoy the day. We made a family visit to the care home Christmas day and all went well, although she was a little unhappy about some of her gifts and grumbled quite a lot!
Now just before Christmas the care home spoke to me to explain that the sleeping tablets mum has been on had affected her mood and mobility that it was not far to mum to continue it. She was tearful most of the day and very distressed. So they rang the GP, there was some to-ing and fro-ing with the CPN (I was not consulted - even though I have LPA) and they decided to take her off it. She was put on it as she is very vocal at night and wanders and the home were not able to deal with it every night as it is not a dementia home.
I agreed this was the right thing to do and to see how she settles without the sleeping tablets with a view to reviewing it again.
In the meantime the care home manger has rang the GP and CPN and got Haloperidol prescribed to use as required as mum can get very upset and vocal and I presume they can't deal with it. They are not a dementia home but said initially they could cope with anything but I am beginning to wonder if we have reached a point where we need to look for a dementia home.
I wasn't consulted about the Haloperidol, and have just read it is an anti-phychotic and these are very dangerous for those that have Lewy Body dementia, which I am being told is very likely that she was mis-diagnosed with Alzheimers and Vascular dementia when in fact it is probably Lewy Body dementia.
I am having trouble dealing with all of this, as I have two young children both having additional needs and they are a handful. I also have my dad who is terribly upset that mum had to move into a home back in July. When the kids go back to nursery and school I can begin to think straight.
I visited mum today and she was sleeping, she did speak to me and my dad but none of it made any sense, and she was crying, and deeply unhappy and resentful that we had put her in a home. We had to leave after an hour as she was just winding herself up and nothing we said made a jot of difference. we left her rambling on in distress and told the manager.
Should I be taking more control over the meds, should I have been consulted, should mum now be in a dementia home. She can be very lucid one minute and totally confused the next. It is so variable. She is so depressed. We all are. I have no support.
Do I ring the CPN tomorrow about the Haloperidol? Or the GP? I have run out of energy and answers. Sorry for the ramble I just needed to get it all out.
Mum came back to our house Christmas eve day, and enjoyed herself drinking sherry and eating mince pies. She came for a full Christmas dinner on boxing day as we decided it would be better for her to come then, as we would not be rushing her and our young kids could enjoy the day. We made a family visit to the care home Christmas day and all went well, although she was a little unhappy about some of her gifts and grumbled quite a lot!
Now just before Christmas the care home spoke to me to explain that the sleeping tablets mum has been on had affected her mood and mobility that it was not far to mum to continue it. She was tearful most of the day and very distressed. So they rang the GP, there was some to-ing and fro-ing with the CPN (I was not consulted - even though I have LPA) and they decided to take her off it. She was put on it as she is very vocal at night and wanders and the home were not able to deal with it every night as it is not a dementia home.
I agreed this was the right thing to do and to see how she settles without the sleeping tablets with a view to reviewing it again.
In the meantime the care home manger has rang the GP and CPN and got Haloperidol prescribed to use as required as mum can get very upset and vocal and I presume they can't deal with it. They are not a dementia home but said initially they could cope with anything but I am beginning to wonder if we have reached a point where we need to look for a dementia home.
I wasn't consulted about the Haloperidol, and have just read it is an anti-phychotic and these are very dangerous for those that have Lewy Body dementia, which I am being told is very likely that she was mis-diagnosed with Alzheimers and Vascular dementia when in fact it is probably Lewy Body dementia.
I am having trouble dealing with all of this, as I have two young children both having additional needs and they are a handful. I also have my dad who is terribly upset that mum had to move into a home back in July. When the kids go back to nursery and school I can begin to think straight.
I visited mum today and she was sleeping, she did speak to me and my dad but none of it made any sense, and she was crying, and deeply unhappy and resentful that we had put her in a home. We had to leave after an hour as she was just winding herself up and nothing we said made a jot of difference. we left her rambling on in distress and told the manager.
Should I be taking more control over the meds, should I have been consulted, should mum now be in a dementia home. She can be very lucid one minute and totally confused the next. It is so variable. She is so depressed. We all are. I have no support.
Do I ring the CPN tomorrow about the Haloperidol? Or the GP? I have run out of energy and answers. Sorry for the ramble I just needed to get it all out.