its a while since I posted hope everyone is as well as can be❤️
I have had swallowing problems for a while,but tonight it has been worse than usual in fact most things seem to be getting worse much quicker than what was usual.
My bowel difficulty, I seem to get on top of it and then the meds don’t work as well as they did.
I adjust and just cope best I can.
Sight wise the same,but more about spacial awareness really.
Memory also although I am still very aware of what is going on, I don’t see many people so listen to the radio quite a bit,but I am no longer recognising what were familiar voices, ie David Attenborough is the latest this week!
The reason I possibly seem a little blasé perhaps too some, is simply because I will be 78 next February so have been more accepting maybe than someone much younger since my diagnosis 4yrs ago and I am physically quite disabled, but I use a wheelchair to garden and it’s been my daughter and my garden that have kept me going.
EBIXA has been a godsend, not easy to begin with,but now feel I am going back those 4yrs to how I was and worse now! There is nothing else I can take!
I go to memory clinic after Christmas and afraid they may take me off it if they think it’s no longer working!
On the whole I have not been afraid and told myself I would take stock after Christmas so trying too hang on for a bit longer.
I must add that I have remained around my 30/40s in my head and simply don’t think in the way many people of my age do! And don’t intend to start now.
I am though someone who needs to know what’s ahead and will cope best I can what ever the problem may be,but now quite frightened of what is ahead❤️
I have had swallowing problems for a while,but tonight it has been worse than usual in fact most things seem to be getting worse much quicker than what was usual.
My bowel difficulty, I seem to get on top of it and then the meds don’t work as well as they did.
I adjust and just cope best I can.
Sight wise the same,but more about spacial awareness really.
Memory also although I am still very aware of what is going on, I don’t see many people so listen to the radio quite a bit,but I am no longer recognising what were familiar voices, ie David Attenborough is the latest this week!
The reason I possibly seem a little blasé perhaps too some, is simply because I will be 78 next February so have been more accepting maybe than someone much younger since my diagnosis 4yrs ago and I am physically quite disabled, but I use a wheelchair to garden and it’s been my daughter and my garden that have kept me going.
EBIXA has been a godsend, not easy to begin with,but now feel I am going back those 4yrs to how I was and worse now! There is nothing else I can take!
I go to memory clinic after Christmas and afraid they may take me off it if they think it’s no longer working!
On the whole I have not been afraid and told myself I would take stock after Christmas so trying too hang on for a bit longer.
I must add that I have remained around my 30/40s in my head and simply don’t think in the way many people of my age do! And don’t intend to start now.
I am though someone who needs to know what’s ahead and will cope best I can what ever the problem may be,but now quite frightened of what is ahead❤️
