Our CPN has asked me to attend a team meeting on how services could be improved - all field workers have been asked to invite a user or carer, for feedback from the horse's mouth.
Having agreed, my mind has gone blank. One thing I think would have helped is some sort of timeline on vascular dementia and what to expect, right from the diagnosis. I feel I was just chucked into caring for a condition I knew nothing about. Also some sort of training on how to handle difficult conflicts with husband would not come amiss - do I nag, do I explode, do I weep, or what?
I also feel I have got far more information from this site than anywhere else. At least I know about silly things like getting the sexes of the cats mixed up, reluctance to wash. When these things manifest themselves I am probably hyper about 'Oh no, another symptom of deterioration' but sometimes this sort of thing helps reassure me that it is not me that is going dotty.
There have been times in the past when I have really wondered if I was getting everything quite out of proportion and that there was not really much wrong with my husband, although now I get far more feedback from friends and relations about whether he is having a good or bad day, which makes it clear that his condition is now obvious to all.
Anyone out there got other points about service to carers?
Having agreed, my mind has gone blank. One thing I think would have helped is some sort of timeline on vascular dementia and what to expect, right from the diagnosis. I feel I was just chucked into caring for a condition I knew nothing about. Also some sort of training on how to handle difficult conflicts with husband would not come amiss - do I nag, do I explode, do I weep, or what?
I also feel I have got far more information from this site than anywhere else. At least I know about silly things like getting the sexes of the cats mixed up, reluctance to wash. When these things manifest themselves I am probably hyper about 'Oh no, another symptom of deterioration' but sometimes this sort of thing helps reassure me that it is not me that is going dotty.
There have been times in the past when I have really wondered if I was getting everything quite out of proportion and that there was not really much wrong with my husband, although now I get far more feedback from friends and relations about whether he is having a good or bad day, which makes it clear that his condition is now obvious to all.
Anyone out there got other points about service to carers?