- Sep 1, 2006
Could I make a plea from all relatives of people with Alzheimer/dementia that all health professionals keep a dialogue with the nearest and dearest rather than try and cut them out of the loop, which is sometimes the feeling I have had especially when my mum has been in hospital. She cannot understand what is going on so cannot let me know so I need someone to tell me what is going on with her care. So often I have felt like a spare cog and despite trying to find a member of staff to ask have felt as if I have been "fobbed" off. Also you would find out some valuable history of the patient if you would just ask those caring for the relative. Do any other relatives of people with AD feel the same, if so, please join me in this and let the professionals know your experiences! We are made to feel as if we should not ask any questions about the treatment and care so why is this?