-
All threads and posts regarding Coronavirus COVID-19 can be found in our area specifically for Coronavirus COVID-19 discussion.
You can directly access this area >here<.
Hi is there anyone on here who would like to buddy up & chat? I was diagnosed with bvFTD a few years ago & im doing well so happy to support others 😁
- Thread starter PJ
- Start date
Hello again @PJ.
This isn't a 'proper' reply to your thread - I just noticed your post and wanted to say that I'm glad that you are doing well. The last time we exchanged posts was around the time you were going through the process of diagnosis.
My wife's dementia has continued to progress but it's at a slow enough pace so we are 'hanging in there', as the saying goes.
I hope your husband is doing well too.
This isn't a 'proper' reply to your thread - I just noticed your post and wanted to say that I'm glad that you are doing well. The last time we exchanged posts was around the time you were going through the process of diagnosis.
My wife's dementia has continued to progress but it's at a slow enough pace so we are 'hanging in there', as the saying goes.
I hope your husband is doing well too.
Hello again @PJ.
This isn't a 'proper' reply to your thread - I just noticed your post and wanted to say that I'm glad that you are doing well. The last time we exchanged posts was around the time you were going through the process of diagnosis.
My wife's dementia has continued to progress but it's at a slow enough pace so we are 'hanging in there', as the saying goes.
I hope your husband is doing well too.
Hello PeteHello again @PJ.
This isn't a 'proper' reply to your thread - I just noticed your post and wanted to say that I'm glad that you are doing well. The last time we exchanged posts was around the time you were going through the process of diagnosis.
My wife's dementia has continued to progress but it's at a slow enough pace so we are 'hanging in there', as the saying goes.
I hope your husband is doing well too.
so lovely to hear you & your wife are doing good., it’s been a long time since we’ve spoke but I do remember you being so helpful & positive.Yes my hubby is fine too thanks, he’s my absolute rock
Hello and welcome to the forum.
If you click the 2nd line of the following link you you will find a Factsheet that details FTD, including the Behavioural Variant. I hope that helps you
What is frontotemporal dementia (FTD)? (404)
My mum has this and i would be interested in activities you do. Mum has lost all interest in anything like knitting, wordsearches, colouring in.
also are you on any specific meds
also are you on any specific meds
Welcome to TP @Carer for mum
PJ hasn‘t been online since August so you may not get a reply.
You may be better starting your own thread to ask for ideas. https://forum.alzheimers.org.uk/forums/i-care-for-a-person-with-dementia.70/
PJ hasn‘t been online since August so you may not get a reply.
You may be better starting your own thread to ask for ideas. https://forum.alzheimers.org.uk/forums/i-care-for-a-person-with-dementia.70/
Hi PJ. I think I may have replied to your previous threads I’ve been member on TP since March 2005 my main subject is driving with dementia but unfortunately in majority of cases the person with the dementia doesn’t see or read my replies so probably its been16 years wasting my time trying help or support them
with regards to your FTD just briefly I was diagnosed with Alzheimer’s in 1999 and FTD in 2003 after PET & SPECT brain scans and still dancing on nicely thankyou so not a problem for me
I will offer one bit of advice and thats stay Positive keep control of your own destiny listen to advice But make your own decisions , and dont worry about others let them worry if they want
or support themwith regards to your FTD just briefly I was diagnosed with Alzheimer’s in 1999 and FTD in 2003 after PET & SPECT brain scans and still dancing on nicely thankyou so not a problem for me
I will offer one bit of advice and thats stay Positive
keep control of your own destiny listen to advice But make your own decisions , and dont worry about others let them worry if they want
Last edited:
Hi Carer for mum, my husband was diagnosed with BvFtd in august at the age of 68.
It’s difficult to motivate him to do anything, even things that have been important to him his whole life often can’t motivate him into action. Recently he even refused to attend our 2 year old grandson’s birthday celebration. He spends the day in front of the tv and searching the internet.
He has no interest in social activity, that isn’t arranged for him and brought to him.
Today is his 69th birthday, I arranged for friends to come for afternoon tea, he sat with us for a while but really he didn’t engage.
I am interested in chatting with others as well, I'm not sure how to do that though. Anybody else happens out there who is awake most of the night?
Good morning @unique name and welcome to the forum.
The best way to chat with others is to look for the weekly Chat Thread. A new one is started every week and people pop into it to chat about anything - not necessarily dementia related -
If you want to chat about specific issues related to your own situation it might be best to begin your own thread - possibly in the same area of the forum that this thread is in -
I have dementia
This forum is for people who have been diagnosed with dementia.
forum.alzheimers.org.uk
People sometimes start threads in the Tea Room - this is an area where people can talk about anything at all - again, not necessarily dementia related -
Hola! I hope this will find you well.
Thank you for your time. I really understand “your langue”.
I too I’m on a daily journey with ‘memory issues’.
Thanks to a ‘Higher Power’ of my understanding, healthcare providers, loved ones & friends I could still drive & manage my finances.
I can’t forget to also be thankful for the ‘Fellowship meetings’ of “Dr. Bob & Bill W.” friends and AD meetings.
* The ‘Serenity Prayer’ is a great help for me on a daily basis.
“Easy does it / Don’t be stressed out, it’s a moment at a time / Baby steps”
I’m blessed today and now because I’m alive, I have fellowship with loved ones and friends.
My family and and I have a very special friend by the name of “chispi”, (she’s a two years old chihuahua).
** She’s a puppy ‘cookie’ enthusiast.
I can honestly say that pets are a Big blessing, indeed there’re therapeutic.
In closing, be safe, take care and may the ‘Higher Power’ of your understanding protect you and your loved ones.
“Felices” / Happy 24hrs.,
Thank you for your time. I really understand “your langue”.
I too I’m on a daily journey with ‘memory issues’.
Thanks to a ‘Higher Power’ of my understanding, healthcare providers, loved ones & friends I could still drive & manage my finances.
I can’t forget to also be thankful for the ‘Fellowship meetings’ of “Dr. Bob & Bill W.” friends and AD meetings.
* The ‘Serenity Prayer’ is a great help for me on a daily basis.
“Easy does it / Don’t be stressed out, it’s a moment at a time / Baby steps”
I’m blessed today and now because I’m alive, I have fellowship with loved ones and friends.
My family and and I have a very special friend by the name of “chispi”, (she’s a two years old chihuahua).
** She’s a puppy ‘cookie’ enthusiast.
I can honestly say that pets are a Big blessing, indeed there’re therapeutic.
In closing, be safe, take care and may the ‘Higher Power’ of your understanding protect you and your loved ones.
“Felices” / Happy 24hrs.,
