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Hi is there anyone on here who would like to buddy up & chat? I was diagnosed with bvFTD a few years ago & im doing well so happy to support others 😁

karaokePete

Registered User
Jul 23, 2017
6,279
0
N Ireland
Hello again @PJ.

This isn't a 'proper' reply to your thread - I just noticed your post and wanted to say that I'm glad that you are doing well. The last time we exchanged posts was around the time you were going through the process of diagnosis.

My wife's dementia has continued to progress but it's at a slow enough pace so we are 'hanging in there', as the saying goes.

I hope your husband is doing well too.:)
 

PJ

Registered User
Jan 26, 2017
359
0
55
Bristol
Hello again @PJ.

This isn't a 'proper' reply to your thread - I just noticed your post and wanted to say that I'm glad that you are doing well. The last time we exchanged posts was around the time you were going through the process of diagnosis.

My wife's dementia has continued to progress but it's at a slow enough pace so we are 'hanging in there', as the saying goes.

I hope your husband is doing well too.:)
 

PJ

Registered User
Jan 26, 2017
359
0
55
Bristol
Hello again @PJ.

This isn't a 'proper' reply to your thread - I just noticed your post and wanted to say that I'm glad that you are doing well. The last time we exchanged posts was around the time you were going through the process of diagnosis.

My wife's dementia has continued to progress but it's at a slow enough pace so we are 'hanging in there', as the saying goes.

I hope your husband is doing well too.:)
Hello Pete 😁 so lovely to hear you & your wife are doing good., it’s been a long time since we’ve spoke but I do remember you being so helpful & positive.
Yes my hubby is fine too thanks, he’s my absolute rock ❤️
 

Carer for mum

New member
Oct 24, 2021
1
0
My mum has this and i would be interested in activities you do. Mum has lost all interest in anything like knitting, wordsearches, colouring in.
also are you on any specific meds
 

Countryboy

Registered User
Mar 17, 2005
1,669
0
South West
Hi PJ. I think I may have replied to your previous threads I’ve been member on TP since March 2005 my main subject is driving with dementia but unfortunately in majority of cases the person with the dementia doesn’t see or read my replies so probably its been16 years wasting my time trying help :D:D or support them
with regards to your FTD just briefly I was diagnosed with Alzheimer’s in 1999 and FTD in 2003 after PET & SPECT brain scans and still dancing on nicely thankyou so not a problem for me

I will offer one bit of advice and thats stay Positive :D keep control of your own destiny listen to advice But make your own decisions , and dont worry about others let them worry if they want :):)
 
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fromnz123

Registered User
Aug 2, 2019
101
0
UK
My mum has this and i would be interested in activities you do. Mum has lost all interest in anything like knitting, wordsearches, colouring in.
also are you on any specific meds
Hi Carer for mum, my husband was diagnosed with BvFtd in august at the age of 68.
It’s difficult to motivate him to do anything, even things that have been important to him his whole life often can’t motivate him into action. Recently he even refused to attend our 2 year old grandson’s birthday celebration. He spends the day in front of the tv and searching the internet.
He has no interest in social activity, that isn’t arranged for him and brought to him.
Today is his 69th birthday, I arranged for friends to come for afternoon tea, he sat with us for a while but really he didn’t engage.