Thanks Jo and Grove. I'm not feeling too good again today, worrying me a bit now. It is possibly the winding down from all the worrying tension of this week kicking in. I did get into quite a state about the news that there was a vacancy for Henry at the care home, then the pre-assessment, and then the shock of whether or not the care home would accept Henry, the silent waiting for their decision.
I should be catching up with much neglected housework today but don't feel like it, so tired. Must also be more strict with myself about my bedtime.
After my visit to the care home yesterday, takng just a few things down, I left with a good feeling. I like the layout of the first floor unit Henry will be in, but I have never liked where the home is situated. It is on a main road, and faces a large garage although there are a lot of large trees behind it. So that is the view from the front bedrooms, and the car park is beneath them. The back bedrooms tend to be dark as they look straight into trees. No views.
However, I was very pleased indeed to see Henry's bedroom is a front one, has a large window (some are very small) and a comfy looking high back armchair to the side of it. Sitting there, he wont really see the car park below, and looking straight across over the main road and garage, there is a good view of our local hills. Each of the five units in the home is named after one of the hills.
My daughter didn't understand why I thought a view important for Henry, but our home is situated at the foot of this range of hills (which is about 12 miles in length), super view, and those hills have played a big part in Henry's life as for years he hill walked. They stretch back for ten miles into another county, and he spent many happy hours up there.
In the hospital his first sign of coming out the awful anguish and despair was him beginning to take an interest in the view from the hospital sitting room large high window, looking across a small garden to our hills beyond. Since then that has been his main focus and interest. I am delighted that he will still be able to gaze out at his beloved hills.
The only possible problem is his MEGA-phobia about noises, even tiny everyday noises. He picked up on anything at home (and in hospital) and would go on and on and on about it. There is a constant flow of traffic on this main road, but it isn't loud noise, a low sort of traffic hum, if you follow.
Sounds like making a big fuss about a little thing, but I'm hoping he does not focus in on it. I may have to take him ear plugs!
At home he drove me crazy repeatedly constantly jumping, startled, saying "What's that? What's that?" over and over again. Little noises I never noticed. Here's hoping.
Other than that the bedroom is fine. There is a large square area and his is one of two rooms off it, separate from others mostly off a very wide corridor from the square area(hall), the corridor leading along to the sitting-room/dining area, it is open plan. I think it will be easier for him to find his own room, rather than wandering along a row of bedroom doors getting confused about which one is his room. The hall and corridor are spacious and he does like to wander about with his zimmer - or without it.
Yesterday I saw him use the zimmer - after I managed to persuade him, grumbling, to use it when he said he needed to go to the toilet. First time for both since he was ill, I thought he had stopped knowing when he needed the toilet, and he was off the zimmer a long time because he was falling. Great relief to see he is back to what he previously was, although that is just a shuffle. Without the zimmer he staggers, sways back and forward like reeds in the wind. Has had several falls.
I met the Head Nurse who did the pre-assessment, she introduced me to several of the staff, and some of the residents. There were three men in the sitting-room, or lounge as called in the home, and another in the quiet area off the hall. One lady was very chatty, very with it, asked if Henry talked, I said yes but he was a quiet man. (apparently the other men do not chat) She said she had been in the home about a year. Head Nurse said five years.
Henry was remarkably talkative yesterday when I visited him, amazingly more like his normal dementia self. I talked about the care home, referring to it by its name, and he did respond. He does not want to be moved, likes where he is. Then said "If I do go to B.P. I wont be there forever." Quite often saying "You want me to..." and "You are going to leave me there...", blaming me for various things. Upsetting. All I could think of to say was that he had health problems which needed nursing care ("I am fine, nothing wrong with me") and that it was not what I want, the decisions were made by the doctors. He then had a moan about "bloody doctors".
Having left the home with a good feeling, I was calm and relaxed with Henry which made it easier to handle the difficult moments. There were a few.
Then I left the hospital feeling relief that at long last we are almost at the end of over 6 months of hopitals, over 4 months in the present one.
On the way home, some shopping, and I bought a large frame, hoping to copy then print a photo for it, but not sure I'll succeed. With my prevous printer I did, but this one has been hit and miss with photos often too dark or blurred. I do 'Fix' them but they do not always print as they look on my laptop.
It is a wedding photo of our daughter and her husband with us and our son-in-law's parents, and Henry always stopped to look at it when going to the kitchen. Apart from perhaps recalling a very happy day (2 years ago), he has now forgotten who our son-in-law is, and although he remembers our daughter he forgets her name. Not to mention often thinking I am his mother, and not recognising himself as he now is! In his mind we are both much younger.
This is all a new experience, I am very anxious and nervous about Monday's move, about our future, although I know everyone with a loved one in care has gone through this, or are going through it. Sailing into unchartered waters.... hopefully calm waters for Henry. For me, well I'm not thinking beyond Monday - not too much anyway. One step at a time, or so I try to tell myself. So many of you have been there before me, you will know the confusion of emotons. As will those at this particular stage, just about to happen.
Thinking of you, Saffie, and I will catch up very soon with you, my apologies for the delay.
Sorry for blethering on too much again. Somehow it does help to write it down, to clarify it in the mind. To know you are all there, understanding, eases the feeling of isolation, some of the fears, which you cannot really talk about to anyone else.
My thanks and my appreciation of all of you who take the time and patience to read my posts and to reply. I cannot imagine how I would have been had the last six months happened before I found TP.
Oh dear, how we shall miss TP next Tuesday when it will be unavailable due to an essential software upgrade.....
Love
Loo xxx