Henry ill, I am concerned....

Loopiloo

Registered User
May 10, 2010
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Scotland
I'm copying the quote written yesterday from my thread ' 'Delayed Discharge', Care Home Interim Placement' to save repeating myself. I am so worried about Henry I feel like putting this post on a separate thread.

I got a shock when I saw Henry today. (now yesterday, Monday) I didn't go over the weekend and he was good on Friday. But today he looked awful, could barely speak, his eyes had that dreadful dead staring look, and I just felt he was not too well. He was also coughing which he has never done before. Not a harsh cough but - can't describe it, sort of choking, and sounded like a lot of loose chesty glut.

He was wearing a short sleeved shirt (not his but with his name on it) and his trunk, back and arms seem to have very suddenly lost weight. The bones in his back sticking out.

He lost considerable weight very quickly the first six weeks in acute hospitals then had gradually gained more weight in the present Community Hospital. They have told me he has a great appetite, would eat anytihng and everything. But it is almost as if he has lost sudden weight since Friday. He looked shrunken, frail.

A man said the young doctor had had Henry into his office this morning but of course Henry had no memory of that. Unfortunately the doctor is ony there in the mornings. The nursing staff were at a meeting. I shall phone and talk to one tomorrow morning.
I did phone the Community Hospital this morning and was put on to the staff-nurse in charge of Henry, a new one, a young man. He has only been there over a week so wont know Henry as well as the other staff. (his 15th week in this hospital) I expresssed my concerns about Henry and he said "he is not good today, worse than yesterday". My heart both sank and leapt in fear. Henry must have worsened after I had left. He had been "fine" at lunchtime.

Well he was not when I saw him some two hours later. Then at some time after I left a nurse had picked up on his increasing confusion and his cough. He was not too confused when I was with him, more agitated because his speech was so bad I could barely understand a word he said and he became irritated.

I was told he is very confused today, his zimmer "walking" not good at all, and last night he had a fall. No details and I had to ask three times if any damage. His elbow graized, bruised.

His cough is "not quite as bad as last night" so it must have worsened after I left. But he could have an infection.

His blood Glucose level is "very high" and they are giving him an insulin injection. The staff-nurse was prattling on about not knowing if this would be permanent insulin injections or emergency and I explained he had the latter over 6 weeks in hospital. But three days before he left a diabetes specialist altered his tablets and stopped the insulin, and glucose level has been fine since in the Community Hospital.

I asked "When is he having the injection?" He replied "Well... as soon as possible I think..."

Staff always remark on Henry's great appetite but today he has had to have help eating "which is not like him". I know that.

The young doctor had seen him this morning "but didn't say anything".

The consultant is in on Wednesday mornings and will see Henry tomorrow.

Meantime, what? He just gets worse? Why did they not phone and tell me?

I suppose if he does worsen over today they will send him to the acute hospital??? I shall now be waiting for a dreaded phone call.

Since seeing him yesterday I have had such an increasing feeling of dread and fear and it peaked this morning. I could almost feel myself there with him and an awareness of him having become more ill

If I sound panicky, I am. Well not panic, more deep dread. The deterioration from Friday until yesterday was marked. So thin, so frail, nothing to fall back on whereas he went into hospital in November physcially in fairly good health and a good weight.

That rapidly declined but then over the weeks in the Community Hospital there was a marked improvement, he gained weight and looked healthier. Although over the last two weeks there have visits when I thought he looked extremely tired and not quite so well. (His hands felt very cold, and his face) But nothing near as bad as yesterday.

Has anyone else experienced a very sudden loss of weight within a short period of time?

It happened after November's surgery but he was ill then, various other health problems arose. Now he looks much more frail than even then. The flesh as if it had peeled off him. I am so afraid.....

I was going to get a taxi down to the hospital this afternoon, but remembering how he was when ill in hospital, dreadfully confused, I know there is nothing I can do to help him, calm him, reassure him, comfort him, as it was the same then. In fact my presence seemed to agitate him more.

Tonight I shall phone again, give the insulin time to act, but over the six weeks in acute hospitals it did not do so quickly and he repeatedly had insulin injections.

I phoned my daughter at work up in Aberdeenshire, she would have phoned the hopital tonight but has something important on at work and wont be home until 10.30pm. She will phone the hospital in the morning. If he is still there.

Sorry to pour it all out, I am just so afraid.... you know how you get those bad gut feelings....

I do so wish I had phoned last night, but it sounds like he became much worse after my visit. I had left him thinking perhaps a temporary blip, a dementia downturn, perhaps I was reading more into it than necessary and so I would wait until this morning before phoning. I should have gone with my increasing gut feeling.

Loo xx
 
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AlsoConfused

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Sep 17, 2010
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I do so hope Henry turns this corner, I well understand the feelings of dread and misery you're experiencing right now.
 

Grannie G

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Apr 3, 2006
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Kent
I understand too Loo but I really wish I could do more than just understand. It is so upsetting for you, 'dread's a terrible feeling. I do hope there are no grounds for your dread. X
 

Jo1958

Registered User
Mar 31, 2010
3,724
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Yorkshire
Loo, hi
I am so very sorry to hear your news, my heart goes out to you as you worry and dread. Sending positive vibes, hugs and support to you from Jo
 

BeckyJan

Registered User
Nov 28, 2005
18,971
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Derbyshire
I do understand those feelings and I am so sorry you and Henry are going through this.

Lets hope the glucose injections and maybe antibiotics for possible infection will help turn things around. It is amazing how we go through rollercoasters from being very ill indeed to relatively well and healthy.

When you phone I advise you emphasise the importance of letting you know of any changes.

Take care
 

Izzy

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Aug 31, 2003
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Dundee
Oh Loo I am sorry things are not good. I'm thinking of you and Henry and I hope there is some improvement. x
 

jenniferpa

Registered User
Jun 27, 2006
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Loo - if his diabetes is out of control, then he could lose wight (and fluid) rapidly. I think the increased loss of fluid could well give the appearance you describe over a very short period of time.

I am so sorry you are having to handle this.
 

nocturne

Registered User
Nov 23, 2009
645
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Yorkshrie
Oh, Loo, my heart goes out to you. You must be so worried and feel so helpless. Why is it so hard to get any information out of hospital staff these days? At least they seem to have recognised that things are not right which gives hope that they will work on finding out what the cause is. Let's hope the insulin does the trick.
Mum got that shrunken look when she was thoroughly dehydrated. Is there any chance Henry is not drinking enough? Mum actually got dehydrated in hospital!
I hope things improve soon.
Jan
 

Bronwen

Registered User
Jan 8, 2010
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Bristol
Dear Loo...I am so very sorry to read the heartbreak that comes through your post. i do hope Henry responds well to the treatment, but gosh what a shock to see him like that..I keep thinking it can't get any worse but each day seems harder, or as carers we are getting weaker, I don't know, ...take care

love
Bronwen x
 

piedwarbler

Registered User
Aug 3, 2010
7,189
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South Ribble
I am so very sorry to read your latest post, Loo, and can only send warm hugs of comfort and my love and prayers that Henry can improve. I hope your daughter can comfort you tomorrow.

My mum has lost weight over the last two months but has stopped eating really and is not being assisted. I doubt there is much similarity between her and Henry's situation. (Mum is in a home with poor food and basically loves on bananas and cake which I take in periodically. I even take fruit porridge for her breakfast as the stuff they prepare in the home looks like cement but it doesn't appear to be given to her very often!)

Love,
 

Nan2seven

Registered User
Apr 11, 2009
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Dorset
Dearest Loo,

I too am so sorry to read your latest post. What an awful worry for you. I do hope Henry is back on the road to recovery very soon.

Thinking of you both and sending love,
Nan XXX
 

grobertson62

Registered User
Mar 7, 2011
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Sheffield
Loo

am thinking of you, I know how hard it is when you see your loved one in this state

I do hope you have better news tomorrow when the consultant has been


love Gill
 

FifiMo

Registered User
Feb 10, 2010
4,703
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Wiltshire
Dear Loo

Only just catching up on your posts and was sorry to read about Henry being ill. Does make you wonder if it is an infection or something doesn't it given the sudden deterioration or perhaps his diabetes playing up. I do know when mother was in hospital after a fall and her blood sugars were all over the place she shrunk before our eyes and became very dehydrated and this didn't help I don't think. Her weight dropped from 10st to 7st following that hospital admission. Until then she had looked well and fit but came home looking her age and very frail and this hasn't improved much since. Reason I haven't been around much is that she got blown over in the wind and has broken her shoulder and is in hospital again! Am now contemplating going up to Scotland over Easter to see what can be done to help.

Just a thought for you - my sister's partner was in rehab at Christmas and she took ill with an infection - they didn't move her back to an acute ward but treated her on the rehab unit. This was despite her really going downhill and losing all power to walk and having lost all progress that she'd made whilst on the unit. I hope that this is the case for Henry and they don't move him elsewhere and just add to his confusion when he is relatively settled where he is.

Thinking of you both and hoping there is improvement in Henry now they are aware that something is not right.

Fiona
x
 

maryw

Registered User
Nov 16, 2008
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Surrey
Dear Loo, only just read your thread. So sorry to hear about the extra worry re Henry and hope someone tells you what is going on. Thinking of you both xx
 

Loopiloo

Registered User
May 10, 2010
6,117
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Scotland
My thanks and appreciation for all your kind messages, and your support. Where else but TP could one find such caring. Who else could I speak to about such matters who truly understand, in particular the implications of illness for dementia sufferers.

I intended phoning the ward about 8pm but could not wait and did so at 6.45pm. Henry had the early afternoon insulin injection and was later twice tested. First time it had come down to 24 but second time it was so high it was off the scale and no reading, it said "high". Not good. (7-10 is ideal, occasional 12 acceptable)

As far as I know the highest it went in earlier hospitals was 29. But who knows....as you say, Jan, why is it so hard to get information out of hospital staff. They have only ever given me the figures for glucose levels when I have first mentioned them, and not always then.

If Henry did have a meal at tea-time I am presuming they tested him before and after it and of course it would have risen after a meal. I used to wait for at least two hours after evening meal as his was always slow to drop, so perhaps they took it too early after he ate. But 24 before a meal and no reading afterwards is not good.

The staff nurse said he would have two more insulin injections, which sounds a bit much after 6.45pm. I'm afraid the six weeks in previous hospitals they never managed to control it, until they called in the diabetic specialist 3 days before the move to the present hospital. She did not approve of Henry having both tablets and insulin injections, the latter often too close together. Too much insulin can be as bad as too little.

The staff nurse said they had put him to bed as he was very tired. Also that he had had a bad night, very confused, out of bed staggering around. That is when he fell.

If no improvement later tonight they would phone the hospital GP again. I can't see what he could do to improve matters, and may want to leave it to the consultant tomorrow morning.

This morning the GP had sounded his chest and said Henry had no infection. But isn't there something else they should do to test for that? I know little about chest infections as Henry has never had them.

Staff-nurse was vague about the weight loss. Also deyhdration. He was dehydrated following surgery as he kept pulling out the drips and they were eventually stopped. I'm told that normally he does drink a lot throughout the day.

No further on, really. I have to be ready for 8.30am to be collected by ambulance any time from then for my 11am lymphoedema treatment so may not manage to phone in the morning, although my daughter said she would and send me an email from work. I have a taxi booked to take me to hospital for 2pm-4pm visiting so will see for myself how he is.

Meantime, I was assured that if any change they will phone me.

I do dread a phone call saying he is in hopspital. This does seem the procedure as several people have been sent to hospital for 2-6 days with infections etc. I don't know where the diabetic specialist is based but she smed to only attended both acute hospitals a day a week or when called in.

My thanks again to all of you, so much appreciated. It has helped to 'talk' to you. Steadied me up a bit.

Love
Loo xx
 

Loopiloo

Registered User
May 10, 2010
6,117
0
Scotland
Loo - if his diabetes is out of control, then he could lose wight (and fluid) rapidly. I think the increased loss of fluid could well give the appearance you describe over a very short period of time
Jennifer, this is what happened in the other two hospitals over the first six weeks. But this time he looks like a skeleton. Although in the present hospital he has gained weight, looked healthier, he was still thinner than before, never regained his prevous weight. Doubt if he ever will now, and has lost a lot of muscle. They seem to have stopped taking him to the gym for physio since he became "Delayed Discharge".

I had not thought of the out of control diabetes causing loss of fluid, hence the sudden change in appearance.

I do wonder what has caused the diabetes to go haywire after being stable the 15 weeks in th rehab hospital.

Loo xx
 

Jo1958

Registered User
Mar 31, 2010
3,724
0
Yorkshire
Loo, hi
How very worrying, I hope you get some sleep and your treatment goes well tomorrow morning.
Take good care of yourself, with best wishes from Jo
 

Loopiloo

Registered User
May 10, 2010
6,117
0
Scotland
Only just catching up on your posts and was sorry to read about Henry being ill. Does make you wonder if it is an infection or something doesn't it given the sudden deterioration or perhaps his diabetes playing up. I do know when mother was in hospital after a fall and her blood sugars were all over the place she shrunk before our eyes and became very dehydrated and this didn't help I don't think. Her weight dropped from 10st to 7st following that hospital admission. Until then she had looked well and fit but came home looking her age and very frail and this hasn't improved much since.
Henry lost almost 3 stone the first six weeks in hospital, I'd guess he regained around half of that, now gone again.

Oh how awful your Mum has broken her shoulder, what a worry for you, and it is not an easy surgery. Could she withstand that?

Henry and a few other elderly people in the rehab hospital who fractured hips did not get the full hip replacement but pins and bolts inserted, and that is major surgery in itself.

I hope Henry like your sister's partner remans in the rehab hospital, but just have to wait and see. They want him in a care home pronto, but doubt they could move him until this problem is sorted out.

All sorts of scenarios flash through my head about that, sent to hospital but no bed held at rehab... but I am not going there at this point in time.
Loo xx