• Expert Q&A: Rare dementias - Tues 3 March, 3-4pm

    Our next expert Q&A will be on the topic of rare dementias. It will be hosted by Nikki and Seb from Rare Dementia Support. If you have any questions about rare dementias, they will be here to answer them on Tuesday 3 March between 3-4pm.

    You can either post your question >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll be happy to ask them on your behalf.



Registered User
Sep 20, 2005
leeds england
new to this. dont know if im doing it right but will have a go anyway. scared. dont know what to do. dad been diagnosed as alzheimers and vascular dementia. what shall i do. he lives alone. dont know where to start.


Registered User
May 1, 2005
Hello Di


I would ring socialservices and involve your dads GP in getting a care package sorted for him...

We took dad to casualty but he hadnt been diagnosed at the time, he was just having odd episodes.

Please dont be scared, you are not alone in this

this site is fantastic

love Jane x


Registered User
Oct 9, 2003
Birmingham Hades
Hi Dianne
please don't be scared we are all willing tto help you all that we can.
Your first call must be your Dad's GP,they can start off everything for you ,do that first.
Tell us more about you worries.
Have a look at the fact sheets on this site go to http://www.alzheimers.org.uk/Facts_about_dementia/factsheets.htm.
There is loads of information there for you.
Keep posting and don't worry and be scared
Best Wishes


Registered User
Mar 16, 2005
Hi Diane,

You're doing fine. This is a good place to start. If your Dad has been diagnosed, then I expect you've been through quite a lot already. It is a scarey situation, but TP can help, as the others have said.

Best wishes,


Registered User
Sep 11, 2005
East Sussex
Hi Dianne

Hi Dianne, my husband has vasvular dementia. I have been feeling quite isolated since was given no helplines after diagnosis. I joined that site last Sunday and already just logging in daily has made me realised that I'm not alone, so no need to feel isolated, join in and get support from the site and the GP, social worker, CPN etc.Anya


Registered User
Sep 16, 2005

So sorry for you and your Dad. It is difficult to know what to do, and I have to say that probably none of us knew what to do at the beginning it really is a steep learning curve. I'd advise to keep harassing the doctors, I don't know what yours are like (I'm in Australia) but most here know where to get you more information and if you can find a geriatric specialist (applicable to early onset sufferers as well) they should definelty be able to point you in the right direction.

If your father is not too far into the disease yet (but again I don't know about the vascular dementia types and what happens with them) you will have time to find things out and be ready for the next stages, this first part is going to be the hardest though.