1. helen johnson

    helen johnson Registered User

    Jun 14, 2006
    1
    Hello,

    My partners father has just been diagnosed and obviously we and the family are shocked but know very little about the future.
    The websites are very useful but they don't mention the timescale of the progression of the illness? Does it vary by person?
    Are there any things apart from medication that can help?

    Thank you
    H:confused:
     
  2. bel

    bel Registered User

    Apr 26, 2006
    757
    coventry
    Help what happens now

    Hi Helen
    I am quite new to tp its my husband that has dementia
    and i know and am still asking my self time scales etc it is not that we want to know how long the eventual out come is just that we are so devestated by what is happening and i understand compleatly where you are at
    I would of liked to of been more help
    but i am not as experienced as others on tp
    keep posting there a lot of people with a lot more info and understandig on tp than us
    DO not stop posting
    love Bel x
     
  3. Norman

    Norman Registered User

    Oct 9, 2003
    4,348
    Birmingham Hades
    #3 Norman, Jun 14, 2006
    Last edited: Jun 14, 2006
  4. Margarita

    Margarita Registered User

    Feb 17, 2006
    10,824
    london
  5. Amy

    Amy Registered User

    Jan 4, 2006
    3,453
    Hiya Helen,
    I think they don't mention it, cos they don't know. Partly it depends on the type of dementia. My mum showed early signs 15 years ago, is now in advanced stages, but still no-one can give us an idea of time. How is your partner and his mum? Is his dad aware of his condition?
    Depends what stage you are at, but easy routines, labels on cupboards, clothes without too many fastenings, , family support for the sufferer and the main carer.
    Welcome to TP, post any questions you have - someone will come up with an answer, Though you may all be feeling bleak now, the future will have highs as well as lows, follow Norman's sign off, Day by Day.
    Love Helen.
     
  6. dmc

    dmc Registered User

    Mar 13, 2006
    1,157
    hiya helen

    welcome to TP, time scale does vary, my mum was diagnosed in february with a very progressive form of dementia, and the doctors said her time was only a year, i know lots of other people can have it for years, so as amy has suggested finding out which type of dementia would be the next step, i havent personnally known of anything other than medication that would help, but patience, love and understanding does help,
    take care
     
  7. Lila13

    Lila13 Registered User

    Feb 24, 2006
    1,342
    We were never given a proper diagnosis for my mother, but if you count prescription of Aricept as a diagnosis, it was 17 days!

    Lila

     
  8. Brucie

    Brucie Registered User

    Jan 31, 2004
    12,413
    near London
    I believe it is almost impossible to predict the duration of the dementia until the person is late in the final stages, and even then it is a gamble.
    I'd suggest it is best to date anything from the first signs of the dementia as diagnosis can take many years, particularly for younger people with dementia, when doctors have less experience.

    My wife showed first symptoms in 1991, I diagnosed her a few years later, and the doctors finally caught up to make an official diagnosis 7 years later. She is now at an advanced stage, but there is no sign of her final deterioration - that could be 5, 10, 15 years more, yet.
     
  9. Margarita

    Margarita Registered User

    Feb 17, 2006
    10,824
    london
    You know what I have learn from reading being on TP yes with a love one who has any type of dementia is take one ay at a time with them don’t look in to there future , it do your head in :rolleyes: , love them look after them get all the out side help you can read up on it try to understand what is happening to the brain of a person with dementia , as for me it help me in my reaction to my mother in dealing with it all .

    It’s been 3 years now I have look after my mum & it’s only past few mouths since being on TP that the realisation of the reality of what is happening to my mum brain is sinking in to me.

    I wish I had, had this information 3 years back , but to tell you the truth I don’t think I would of really believed it , all that change a lot with my mother is that she does forget what I tell her & her balance is going .

    All the best its always lovely to meet someone new to TP
     
  10. Lynne

    Lynne Registered User

    Jun 3, 2005
    3,433
    Suffolk,England
    Hi Helen,

    Welcome to Talking Point, although we all have a sad reason for meeting here.

    Once you & your partner are over the shock, I think you'll find it easier to deal with if you find out a bit about Alzheimer's Disease by accessing some of the very good factsheets which the Alzheimer's Society produce.
    Just click on the "i Factsheets" icon at the top left hand corner of the screen, and there's a weath of information at your fingertips.

    My own Mum (87 years old) started showing early signs about 3 years ago but, as it coincided with the death of her sister from cancer, I thought at first that it was grief and/or depression. She was only 'officially' diagnosed last month, and is now taking Aricept. Hopefully this will slow now the decline in her memory, and also reduce the (uncharacteristic) anxiety state she gets into sometimes. Even in a person of her advanced years, there is no 'timescale' by which one can be guided. We shall just have to take things day by day, at HER pace, and make adjustments where possible. At present she is fine to stay in her own house by herself during the day, can still use the phone, simple microwave, kettle, washing machine and so on. However, her short term memory is awful, and I have to remember her daily pills, etc.

    Best wishes
     

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