I am sure this has been asked before, but my sister and I are so short of time while looking after our mum and dad that I just don't have time to trawl through previous posts - sorry if this is a duplication of previous questions.
We are currently dealing with dad in hospital. He has been in EMI unit in a care home for 3 months, but he has a fractured spine due to osteoporosis and is pretty much immobile now and in a lot of pain, so we're swimming through treacle trying to work out what to do with him next. I don't think his current care home can cope with him - in theory,they SHOULD be able to, but the care there is really not up to the standard he needs, unlike the home my mum is in which is top notch. I think he needs nursing care, or certainly a lot more 'hands on' care as he can't turn himself in bed or get up an down unaided. As we are not allowed on his current ward until 1pm when all the doctors and physios have been and gone, we cannot find out what is happening with him. The nurse on his ward yesterday was singularly unhelpful yesterday, and during the 2 hours I was allowed to be with him yesterday afternoon, she sat on the other side of the glass partition and ignored us, despite me having asked for an update meeting with her when I arrived. The discharge nurse came round to talk discharge, and we said we couldn't get on with discharge process until we get dad's pain management under control and until one of the professionals talks to us as we need to organise better care for him when he is no longer in hospital and we need all the details if we are to organise a different care home and possibly nursing care. We are self funding, so absolutely no help from social services. I know responders to this post will say we're entitled to social services input, but I have tried and tried and tried and the best I can get from SS in West Cheshire is an offer of a list of care homes. Helpful? Not so much!
I need to know if Age UK or Alzheimers Society or anyone else offer any kind of advice in this respect? I've been sent the NHS CHC guide by a well meaning friend, but it is 167 pages of jargon and I just don't really have the time to read and understand it properly just now.
If anyone knows of a readable understandable guide produced by anyone for the layperson who spends half her life in the car to the hospital, sitting by the hospital bed or in the car on the way home from the hospital or visiting mum in the care home or sleeping I would be grateful for a link!
We have requested a meeting with the consultant (the discharge nurse told us to email him, but the hospital do not give out phone numbers or email addresses for consultants) so we can find out what stage his care is at, whether they think he needs nursing care and whether they can find better ways of controlling his pain so he could at least be turned over in bed without screaming in agony.
You guys are the experts - forget the NHS professionals! I look forward to your always helpful and calming advice.
Thanks in advance.
We are currently dealing with dad in hospital. He has been in EMI unit in a care home for 3 months, but he has a fractured spine due to osteoporosis and is pretty much immobile now and in a lot of pain, so we're swimming through treacle trying to work out what to do with him next. I don't think his current care home can cope with him - in theory,they SHOULD be able to, but the care there is really not up to the standard he needs, unlike the home my mum is in which is top notch. I think he needs nursing care, or certainly a lot more 'hands on' care as he can't turn himself in bed or get up an down unaided. As we are not allowed on his current ward until 1pm when all the doctors and physios have been and gone, we cannot find out what is happening with him. The nurse on his ward yesterday was singularly unhelpful yesterday, and during the 2 hours I was allowed to be with him yesterday afternoon, she sat on the other side of the glass partition and ignored us, despite me having asked for an update meeting with her when I arrived. The discharge nurse came round to talk discharge, and we said we couldn't get on with discharge process until we get dad's pain management under control and until one of the professionals talks to us as we need to organise better care for him when he is no longer in hospital and we need all the details if we are to organise a different care home and possibly nursing care. We are self funding, so absolutely no help from social services. I know responders to this post will say we're entitled to social services input, but I have tried and tried and tried and the best I can get from SS in West Cheshire is an offer of a list of care homes. Helpful? Not so much!
I need to know if Age UK or Alzheimers Society or anyone else offer any kind of advice in this respect? I've been sent the NHS CHC guide by a well meaning friend, but it is 167 pages of jargon and I just don't really have the time to read and understand it properly just now.
If anyone knows of a readable understandable guide produced by anyone for the layperson who spends half her life in the car to the hospital, sitting by the hospital bed or in the car on the way home from the hospital or visiting mum in the care home or sleeping I would be grateful for a link!
We have requested a meeting with the consultant (the discharge nurse told us to email him, but the hospital do not give out phone numbers or email addresses for consultants) so we can find out what stage his care is at, whether they think he needs nursing care and whether they can find better ways of controlling his pain so he could at least be turned over in bed without screaming in agony.
You guys are the experts - forget the NHS professionals! I look forward to your always helpful and calming advice.
Thanks in advance.