Help please..mum in pain

Baby Bunty

Registered User
Jan 24, 2018
297
0
Hi all havent posted for a while..but still reading.my mum is end of life now ..however this was said 6 months ago..but mum is still hanging in there..totally soul destroying aweful to see our dear mum so so fragile in bed..my concerns not is that as soon as she is touched or turn she is in pain..( doesnt warrant sygrine driver yet but all medication in place when needed)...she is on codiene 30mg and pararectomal and ormorph for break through relief..however i feel staff are not aware if mum is in pain as she only getting oromorph when family ask..i have had a frank talk to them about being aware off mums body lanague and facial expressions..D/N come in regularly..i am going to phone Gp tomorrow about giving mum maybe so slow releaseing pain relief..ie patches but i have read that some patches cant good for dementia pts..manager at home says some others pts are on them...the thought off mum being in pain is heartbreaking for me..and i feeling overwhelmed yet agian with it.. anyone advise. Xx
 

try again

Registered User
Jun 21, 2018
1,308
0
If she is in pain when moved I thought good practise nowadays was to anticipate that and give more relief before the move in readiness. A chat with the prescriber is a good start.
 

Baby Bunty

Registered User
Jan 24, 2018
297
0
Thank you for reply..i know thats what i saud to manager..doctor only up dose of codiene last week..as this as really only just started..she only about 4 stone in the bed..and she constansly in feocal postion..i just wondering if slow release would be better..or make sure she given ormorph pre turn..she on strict 2 hours turns in case pressure areas develops.x
 

garfield3

Registered User
Jun 30, 2018
417
0
So sorry to hear about your mum. A very difficult time. I think, I am heading down your route with mum. Not there yet, but getting closer. Mum broke her femur about 3 yrs ago and should have had a hip replacement about 5-6yrs ago . It didn't happen because of alzhiemers. She has been on fentynal patches for the pain. And liquid paracetamol. Could be worth an ask. The patches are changed every 3 days and are slow release.

Hope things get sorted soon for you and your mum. Take care.xx
 

Helly68

Registered User
Mar 12, 2018
1,685
0
It is a bit of a different thing, but maybe the GP could get advice form a pain clinic? When my joints were bad, I was referred to one and other options, including patches, were discussed. It is so hard with dementia, you have my sympathies.
 

Jessbow

Registered User
Mar 1, 2013
5,679
0
Midlands
To me, its seems absolutely nuts that someone who is at 'end of life' isn't given as much pain relief as is obviously nessesary. Its unkind not to.
 

Baby Bunty

Registered User
Jan 24, 2018
297
0
Thankyou all for replys..i have requested for doctor.d/n to assess her..just cant bear that mums in pain.xx
 

love.dad.but..

Registered User
Jan 16, 2014
4,962
0
Kent
I agree with Jessbow be forceful and insistent with manager..GP...it is unacceptable that your mum is in continuous pain at this stage so an urgent review is needed
 

Baby Bunty

Registered User
Jan 24, 2018
297
0
Thankyou.D/N just been out.she going to discuss pain patch which is slow releasing as well as top upnpain relief.xxc
 

canary

Registered User
Feb 25, 2014
25,018
0
South coast
D/N just been out.she going to discuss pain patch which is slow releasing as well as top upnpain relief.
Good, I hope it gets sorted
.i am going to phone Gp tomorrow about giving mum maybe so slow releaseing pain relief..ie patches but i have read that some patches cant good for dementia pts
They are often not recommended as they can make people more confused and prone to fall. I honestly dont think you have to worry about this
 

Baby Bunty

Registered User
Jan 24, 2018
297
0
Thankyou..gp now wants a meeting to discuss options!!!..see him on Wednesday ..he isnt keen on patches??..xxx
 

Baby Bunty

Registered User
Jan 24, 2018
297
0
Hi..feel really nervous tonight about meeting tomorrow!..not sure what doctor is going to suggest??!.
 

love.dad.but..

Registered User
Jan 16, 2014
4,962
0
Kent
Try not to get too worried..your aim is to get your mum pain free...that should be the GPs aim as well so say whatever you need to bring that about...during my dad's end of life with a locum dr visiting in the small hours after a fair bit of discussion I resorted to...'you cannot leave my dad in pain I won't let you' and cried...but it got me the result I wanted. Be calm but assertive. Write down anything you want to say that way you won't forget and you will have prompts. Write down continuous pain relief suggestions...'if it was your mum how could you achieve effective pain relief' if you feel you are getting nowhere.
good luck
 

katydid

Registered User
Oct 23, 2018
58
0
Thankyou.D/N just been out.she going to discuss pain patch which is slow releasing as well as top upnpain relief.xxc

Surprised to hear that syringe driver “not appropriate yet”. The dose and speed of delivery is what matters.
With a driver, continuous delivery can start low and slowly increase, also a small bolts dose can be given pre moving for washingturning, easily and efficiently, without detriment to patient. Also sedatives, anti sickness drugs can be added if needed. You should be able to access a pain control team or nurse.
You should not have worries re pain, or be left with memories like that either.
 

Qualityofcare

New member
Oct 23, 2018
1
0
Thankyou all for replys..i have requested for doctor.d/n to assess her..just cant bear that mums in pain.xx
Hello,
I manage a dementia specialist care home and have alot of dealing with end of life nurses. Some of our EOL residents with dementia have had oxycodone tablets, one tablet that last 12 hours so only have to administer x2 a day.
May be worth requesting?
Best of luck
 

Jessbow

Registered User
Mar 1, 2013
5,679
0
Midlands
Surprised to hear that syringe driver “not appropriate yet”. The dose and speed of delivery is what matters.
With a driver, continuous delivery can start low and slowly increase, also a small bolts dose can be given pre moving for washingturning, easily and efficiently, without detriment to patient. Also sedatives, anti sickness drugs can be added if needed. You should be able to access a pain control team or nurse.
You should not have worries re pain, or be left with memories like that either.


Syringe driver is only usually used right at the very very end,

Pain patches do sound more appropriate
 

Spamar

Registered User
Oct 5, 2013
7,723
0
Suffolk
48 hours and she’s still in pain? This is terrible. I’d be there shouting and screaming! Being in pain that long, you wouldn’t do that to an animal! And you would be committing an offence if you did.
I am totally disgusted. Go in there, guns blazing. The FIRST thing to do is to get your mum out of pain.
 

Baby Bunty

Registered User
Jan 24, 2018
297
0
Hi all thankyou for all your replies..mum has not been in constant pain..but is showing signs off pain before her next dose is given..they upped codiene last week to 30mg..4 x daily..and as ormorph prn..which i know mum only gets when we ask..girls have been better last few days and has been giving mum the oromorph more..i dont think mum is at stage for sygrine driver as yet..but i want better and stonger pain relief as i dont want her in pain at all..mums gp is good so will see what he suggest..D/N will also be there too.xx
 

silkiest

Registered User
Feb 9, 2017
865
0
Hi in my experience patients with dementia should not be on PRN medications - how can they ask for relief, its impossible. Even when people are fully aware , by the time they complain it is too late as medication takes a period of time to work. One GP I worked with used to say PRN = Pain Relief NIL. Do not be fobbed off. 30mg codeine is half the maximum dose. If it is not enough it needs to be changed.