Hi I care for my husband who has vascular dementia he,s 54 now but he was diagnosed when he was 50 , it would be good to talk to people going through the same thing
Hi I care for my husband who has vascular dementia he,s 54 now but he was diagnosed when he was 50 , it would be good to talk to people going through the same thing
Hi badietta, sorry to hear about your husband he,s still very young too, your right life's not fair we thought we would have time for ourselves once the children left home but it wasn,t to be as I'm now his time carer ,he can,t do anything for himself now but mostly I.miss the conversations and the cuddles , it will be nice to talk to someone who understands xHi Judy
My husband is about 10 years older than yours but has only just been diagnosed with dementia (and the specialists are still arguing about which type it may be) having been slowly but steadily going downhill for the past 5 years. Even though I know the reality, I still feel bewildered and find myself constantly asking how this can have happened when he is still so young, when we had thought that we would have years of active life ahead of us, doing all the things that we had planned. I feel deeply for you, and for him. Life just isn't fair, is it. So I made the decision that I intended to make every day special in some way for my husband; to enjoy the things that we can now do together, and try to live each day as it comes without thinking too much about the longer term future ... and sometimes I even manage to accomplish this! On other days, like you, I need someone to talk to as well. So maybe we can talk to each other. I would like that very much.
Hi Lynne and Richard
I have read both of your posts, along with those of Judy, obviously! It seems that the main thing we have in common are spouses with FTLD maybe mixed with AD. Do your spouses also have Atrial Fibrillation? My husband, who is asymptomatic, and has only just been diagnosed, may have had this for years and I have been reading that AF is very much linked with dementia. I would be grateful for any information about FTLD that you have.
Thanks