Hi all long post sorry just need advice
i recently posted about my dad being ill hes already got advanced dementia stage 6 but still active young 73 anyway in last 2/3 weeks has been very ill
Coughing for last 8 weeks took him drs 2 wks ago he gave steroids possible copd flare up dad hasnt had any copd in last 10 yrs been fine
also swallowing issues with tablets dr turned them into melt in water /melt in mouth then a week later
Suddenly declined in 2 days coughing like mad /plegm /vomiting slightly/not eating hard food /weeing all the time / and constantly loud belching hugging hes tummy all over the course of a weekend and this week within that time
I've called 2 ambulances/111 pestered the chemist / drs /took him for ultrasound at private clinic arranged and paid for by me last sunday ( absolute nightmare by the way dad kicked off refused the test eventually had it then was swearing n shouting on way out ?♀️
Called 1 st ambulance 2 wks ago came out was going bring him to hospital said could be bowel blockage but I wouldn’t be allowed in and dad was already agaited confused so they deceided to get 2 nd opion n call out of hours gp .out of hours gp came 3 hours later and dad lied down dr checked tummy said ok nothing wrong with him by this time dad had temporally stopped coughing n belching
Next day called dr had to wait 2 days to get bck to me in the meantime rung private clinc to arrange ultrasound to see of anything going on
Wensday last locum dr rung back said they were having meetings to find out how to proceed she rung me back said they would put my dad on 2 wk emergency appointment for possible cancer then I told her im still going ahead with private ultrasound anyway
Nobody offred x ray -blood tests so far ...
And she said she would refer him to salt team ( salt team they now dont want to know as said dad needs further investigation )
Next day drs receptionist rung said he booked a phone appointment i said no he needs face to face appointment hes very ill he then cancelled that said hospital will be in touch i wish now id kept my mouth shut ?
Amist all the confusion dad was rebooked for another phone consultant date /and reception didnt know what was happening
?over last took dad to ultrasound last sunday disaster managed to get test done just about he was throwing tantrums
Nxt day morning called 2 nd ambulance as dad was belcing so bad holding on to sofa very distressed horrible to watch was pulling my hair out in stress (I'm self medicating dad with peto bismol andrews liver salt and sillicol gel to try and help him )
Ambulance wouldn’t do anything cut a long story short checked hes ecg chest and bloid pressure spent more time ringing dr and out in the ambulance then actually with my dad kept patronising me saying ohh you got carer burnout did you do this did you ring the dr have you thought about care home etc i was getting annoyed bybit qll said the hospital wouldn’t do nothing only tests they just done said hold fire till appointment comes up very frustrating ?said he rung dr n dr said nothing they can do n will have another meeting about him this week but to just wait till hospital appointment comes up
All wk now going into 3 rd wk dads still ill
Had to chase up private ultrasound test for 3 days for results then email them myself to gp as private company useless disgrace .
In meantime results came bck ok bit of fatty liver dr spoke briefly said he needs x ray /stool test / blood test
This was private dr
Then appointment came through to hospital friday face to face to see consultant or so I thought..
Spoke to mental health nurse who offred to go to hospital with us
Yesterday got phone call from hospital which has thrown everything up in the air again im afraid i lost it apparently its for a endoscopy which could be perfomed same day n before that dads got to have a covid test 3 days before before
I couldn’t believe it
1 he will not have a covid test neither a endoscopy
If they try to perform either test he will go ballistic and likely hit out not going to happen
Tried calling the hospital but couldn’t get it told him he wont be having a procedure as he got advanced dementia he needs specialist help ie sedation or alternative tests so therfore there not point in him going for covid test as he will only be seeing consultant i said ye will not telorqte a camera shoved fown hes neck not a slab of meat
He kept saying when can he come in fir covid test grrrrrr
I was holding out some hope of dad getting help now seems hopeless spoke to nhs rebooking line to cancel it for hine appointment in the hope i can make some sense to the consultant and explain the situation but i cant cancel call centre staff said maybe best to get yhe endoscopy he needs it i told her u don’t understand he cannot have it !!! Gp receptionist said why dont i leave the test cancel altogether everyones got a opion on it now ?
Ive alreafy gpt a prebooked appointment with dr /psychiatrist via zoom monday booked a month ago before all this so ill have to see what dr comes up with
Can you help at all
i recently posted about my dad being ill hes already got advanced dementia stage 6 but still active young 73 anyway in last 2/3 weeks has been very ill
Coughing for last 8 weeks took him drs 2 wks ago he gave steroids possible copd flare up dad hasnt had any copd in last 10 yrs been fine
also swallowing issues with tablets dr turned them into melt in water /melt in mouth then a week later
Suddenly declined in 2 days coughing like mad /plegm /vomiting slightly/not eating hard food /weeing all the time / and constantly loud belching hugging hes tummy all over the course of a weekend and this week within that time
I've called 2 ambulances/111 pestered the chemist / drs /took him for ultrasound at private clinic arranged and paid for by me last sunday ( absolute nightmare by the way dad kicked off refused the test eventually had it then was swearing n shouting on way out ?♀️
Called 1 st ambulance 2 wks ago came out was going bring him to hospital said could be bowel blockage but I wouldn’t be allowed in and dad was already agaited confused so they deceided to get 2 nd opion n call out of hours gp .out of hours gp came 3 hours later and dad lied down dr checked tummy said ok nothing wrong with him by this time dad had temporally stopped coughing n belching
Next day called dr had to wait 2 days to get bck to me in the meantime rung private clinc to arrange ultrasound to see of anything going on
Wensday last locum dr rung back said they were having meetings to find out how to proceed she rung me back said they would put my dad on 2 wk emergency appointment for possible cancer then I told her im still going ahead with private ultrasound anyway
Nobody offred x ray -blood tests so far ...
And she said she would refer him to salt team ( salt team they now dont want to know as said dad needs further investigation )
Next day drs receptionist rung said he booked a phone appointment i said no he needs face to face appointment hes very ill he then cancelled that said hospital will be in touch i wish now id kept my mouth shut ?
Amist all the confusion dad was rebooked for another phone consultant date /and reception didnt know what was happening
?over last took dad to ultrasound last sunday disaster managed to get test done just about he was throwing tantrums
Nxt day morning called 2 nd ambulance as dad was belcing so bad holding on to sofa very distressed horrible to watch was pulling my hair out in stress (I'm self medicating dad with peto bismol andrews liver salt and sillicol gel to try and help him )
Ambulance wouldn’t do anything cut a long story short checked hes ecg chest and bloid pressure spent more time ringing dr and out in the ambulance then actually with my dad kept patronising me saying ohh you got carer burnout did you do this did you ring the dr have you thought about care home etc i was getting annoyed bybit qll said the hospital wouldn’t do nothing only tests they just done said hold fire till appointment comes up very frustrating ?said he rung dr n dr said nothing they can do n will have another meeting about him this week but to just wait till hospital appointment comes up
All wk now going into 3 rd wk dads still ill
Had to chase up private ultrasound test for 3 days for results then email them myself to gp as private company useless disgrace .
In meantime results came bck ok bit of fatty liver dr spoke briefly said he needs x ray /stool test / blood test
This was private dr
Then appointment came through to hospital friday face to face to see consultant or so I thought..
Spoke to mental health nurse who offred to go to hospital with us
Yesterday got phone call from hospital which has thrown everything up in the air again im afraid i lost it apparently its for a endoscopy which could be perfomed same day n before that dads got to have a covid test 3 days before before
I couldn’t believe it
1 he will not have a covid test neither a endoscopy
If they try to perform either test he will go ballistic and likely hit out not going to happen
Tried calling the hospital but couldn’t get it told him he wont be having a procedure as he got advanced dementia he needs specialist help ie sedation or alternative tests so therfore there not point in him going for covid test as he will only be seeing consultant i said ye will not telorqte a camera shoved fown hes neck not a slab of meat
He kept saying when can he come in fir covid test grrrrrr
I was holding out some hope of dad getting help now seems hopeless spoke to nhs rebooking line to cancel it for hine appointment in the hope i can make some sense to the consultant and explain the situation but i cant cancel call centre staff said maybe best to get yhe endoscopy he needs it i told her u don’t understand he cannot have it !!! Gp receptionist said why dont i leave the test cancel altogether everyones got a opion on it now ?
Ive alreafy gpt a prebooked appointment with dr /psychiatrist via zoom monday booked a month ago before all this so ill have to see what dr comes up with
Can you help at all