1. Expert Q&A: Benefits - Weds 23 October, 3-4pm

    Our next expert Q&A will be on the topic of benefits. It will be hosted by Lauren from our Knowledge Services team. She'll be answering your questions on Wednesday 23 October between 3-4pm.

    You can either post your question >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll be happy to ask them on your behalf.

Hello I'm Anna I'm new to this.

Discussion in 'Welcome and how to use Dementia Talking Point' started by nannaanna, Aug 8, 2015.

  1. nannaanna

    nannaanna Registered User

    Aug 7, 2015
    2
    Plymouth UK
    I care for my Aunt who has Lewy Body disease a very common form of dementia. I had never heard of it. The challenge I am struggling with as is she, it is intermittent. If anyone has experience of this particularly it would be very helpful. Saying that any help would be welcome.

    I have just come out of a really sudden bad patch with her and its left me feeling guilty that I wasn'there when she needed me most when it arrived. Because it comes and goes with no knowing when my continuing to work as I was may be very difficult. Although I have a lot of support, I imagine it may wear thin.

    Anna
     
  2. Grannie G

    Grannie G Volunteer Moderator

    Apr 3, 2006
    69,584
    Kent
    Hello Anna

    No one can predict when a person with dementia will have an off moment and need more help. It's what makes being a carer so difficult.

    I'm sure everyone on TP whether living with the person or not will know of your experiences and feel equally guilty or frustrated.

    The rule of thumb really is to provide as much support as possible and try to ensure the person you are caring for is not at risk . It's easier sId than done if you cannot be there at all times.
     
  3. CollegeGirl

    CollegeGirl Registered User

    Jan 19, 2011
    9,534
    North East England
    Hello Anna, and a warm welcome to TP. I'm sure you'll get lots of friendly advice and support here.

    Have you read the factsheet about Lewy Bodies dementia? I don't know if will be helpful to you, but you can find it here:-

    http://www.alzheimers.org.uk/site/scripts/documents_info.php?documentID=113

    There are lots of other factsheets in the Resources section, which is shown on the right hand side underneath the pale blue strip above.

    I'm sure others will be along very shortly with better help for you, but I just wanted to say hello and welcome.
     
  4. nannaanna

    nannaanna Registered User

    Aug 7, 2015
    2
    Plymouth UK
    Thank you College girl

    Off to look into day care option and changing my work pattern to nine to five. Thank you for the link.
     

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