Hello again,
I have at long last got myself a laptop and hopefully will be dropping in more often, mind you my typing has not improved. A lot has changed on the forum since i last used it and to be honest im not sure that I understand what a blog means!
However what hasnt changed are the reasons for being here and the support the forum offers.
Donal is still fighting, his poor body and mind have lost all power.I am still visiting the home to feed him his meals and be part of his daily care. I have learnt so much about nursing homes over the last 3 years and I have learnt to look at care from a different perspective and understand that while the care must be of a high standard it is not a one to one situation. That was what i was hoping for initially but realize it is just not possible.
I also look at Donal some days and think he just looks like his old self but I forget that I am now looking at him with different eyes.
He still takes many infections but his swallow is the most dramatic he is constantly having to be suctioned.-then he aspirates.
Its almost 15 years now and I still cannot come to terms what has happened to us but when I look at this forum it reminds me of just how many are being diagnosed every day.
Nice to be here again
Pat
I have at long last got myself a laptop and hopefully will be dropping in more often, mind you my typing has not improved. A lot has changed on the forum since i last used it and to be honest im not sure that I understand what a blog means!
However what hasnt changed are the reasons for being here and the support the forum offers.
Donal is still fighting, his poor body and mind have lost all power.I am still visiting the home to feed him his meals and be part of his daily care. I have learnt so much about nursing homes over the last 3 years and I have learnt to look at care from a different perspective and understand that while the care must be of a high standard it is not a one to one situation. That was what i was hoping for initially but realize it is just not possible.
I also look at Donal some days and think he just looks like his old self but I forget that I am now looking at him with different eyes.
He still takes many infections but his swallow is the most dramatic he is constantly having to be suctioned.-then he aspirates.
Its almost 15 years now and I still cannot come to terms what has happened to us but when I look at this forum it reminds me of just how many are being diagnosed every day.
Nice to be here again
Pat