Hello everyone. This is my first attempt so please bear with me.

Discussion in 'Welcome and how to use Talking Point' started by Greeeneyes, Aug 11, 2018.

  1. Greeeneyes

    Greeeneyes Registered User

    Aug 31, 2016
    7
    Dorset
    Hello everyone. I hope I'm able to use this forum, I'm not very tech savvy.
    My sister and I share our lovely bungalow having sold our respective properties to buy and move in together upon our retirement a few years ago. All was well at first but 6 years ago I noticed she had memory problems. She was in denial and refused visits from memory nurse until last year when she didn't realise she was having the ACE 111 test. Her results were very low. 12/100and 1/30 on the mini ACE.
    I dread to think what the scores are now as there has been a huge deterioration. So much so that I am now looking at nursing homes. Does anyone know how many points per year are usually dropped on the ACE 111 test.
    I would judge that she is stage 7a, talks non stop gibberish although she is still continent..
     
  2. Beate

    Beate Registered User

    May 21, 2014
    10,682
    Female
    London
    So sorry to hear about your sister's deterioration. There is no "usually" though, as everyone is different. The last few years of his life my OH had a consistent 0/30 score on the MMSE which is the only test he had to do. I wouldn't put too much importance on those scores though but I find this symptoms tracker quite helpful:
    http://alzlive.com/wp-content/uploa...-Dementia-Person-Centered-Symptom-Tracker.pdf
     
  3. nae sporran

    nae sporran Volunteer Host

    Oct 29, 2014
    4,907
    Male
    Bristol
    Welcome to the forum, Greeneyes. I'm sorry your sister's deterioration has dampened plans for your retirement together and brings you here.
    As Beate says, everyone is different and my OH seems to go through phases depending on her general health. When she is tired, her arthritis plays up badly or has a UTI her symptoms are worse, before she stabilises again. Have you checked for other problems just as a possibility?
     
  4. Amethyst59

    Amethyst59 Registered User

    Jul 3, 2017
    5,688
    Female
    Kent
    Hello, welcome from me too. If I’ve learnt one thing in the two years or so, that I have had dealings with dementia, it is that everyone is so different. I think my husband has gone into a care home at an earlier stage than many others do...but our circumstances were different! I’m not sure how helpful it would be for you to see scores, or know about deterioration...the thing is, if she needs a care home, then that is the stage you are at. I hope that makes sense.
    I am so very sorry for you though. I am very close to my sister, she has seen me through a few crises, and I would be devastated if she were ill. Do keep posting, you will find plenty of support from the members here.
     

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