1. Expert Q&A: Benefits - Weds 23 October, 3-4pm

    Our next expert Q&A will be on the topic of benefits. It will be hosted by Lauren from our Knowledge Services team. She'll be answering your questions on Wednesday 23 October between 3-4pm.

    You can either post your question >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll be happy to ask them on your behalf.

Haven't even started properly yet and I already feel like I have been set back

Discussion in 'I care for a person with dementia' started by GarageDragon, Apr 29, 2015.

  1. GarageDragon

    GarageDragon Registered User

    Jan 20, 2015
    28
    My mother (very early stages of mixed dementias) is(was) supposed to have bunion surgery next month, which was to be carried out under a local rather than general anaesthetic as per her consultants advice. It's fairly urgent now as she's in pain and has reduced mobility. This has been on the cards for a while (surgery was initially advised quite a number of years ago, but she opted to try and manage without surgery at that point, not realising how bad it would get). Care following the surgery was apparently all in hand via her CPN, but her CPN has now been off sick for a number of weeks (months?). She does not yet have a social worker, but I think that I may have managed to get the ball rolling on that. I have just found out that because the surgery is to be carried out not at the local hospital, but at a clinic with no facility for overnight stays, care following the surgery is not possible. The only option, it appears, is to start the whole referral process again, with an initial assessment within 18 weeks, to get a referral to the hospital - which apparently only does the surgery under a general anaesthetic. I am feeling suckerpunched. We made it very clear that living about 3 hours away, we were not able to provide the after care that she would need (apparently minimum 48 hours around the clock care/supervision, and 6+ weeks close care following that). We thought the care was organised, and she has good friends and my SiL close by who could keep an eye.

    After a days 'phoning and emailing, we now have a replacement for the CPN - a mental health nurse, who is going to look into this - she sounded lovely on the telephone.

    So, I guess, partly this is just an explosion of frustration, and partly a request for any suggestions that can help me find a solution. I have spoken to Age UK who have pointed me in the direction of a number of factsheets, but they do seem focussed on emergency care in the event of accidents, rather than essential scheduled care. I am hoping (somewhat desperately) that the MH nurse will be able to at least point us in the right direction - I haven't even broached the distinct likelihood that the op may not be happening with my mother yet.
     
  2. GarageDragon

    GarageDragon Registered User

    Jan 20, 2015
    28
    Developments - feeling lost!

    So, I spent quite a lot of time phoning round different people in case anyone could help, and now have a social worker assisting (who seems lovely), and the prospect of a social worker visiting my mother tomorrow to do an assessment: I am hoping I can find someone to care for my children after school so that I can go. Post op care was, I was told, in hand once more, and I had breathed a huge sigh of relief.

    I have just been told that I need to arrange the intial residential care that my mother will need - and been given a number to discuss the financial side of things with, along with a list of 'appropriate to the needs of my mother' care homes, and I need to advise tomorrow which care home. So my question is, is there any way I can find out how friendly/comfortable/homely/suitable the places are? I've Googled, and already dismissed one on the basis of the CQC report, but am lost as to how to make a decision from here.
     
  3. Grannie G

    Grannie G Volunteer Moderator

    Apr 3, 2006
    69,586
    Kent
    I`m afraid the only way you can find a suitable home for your mother is by personal visit. I do understand how difficult this may be when you have a young and dependent family and job to maintain but there`s really no other way.

    See what advice the Mental Health Nurse has to offer and don`t hold back asking for help. You will not be able to find a suitable home in the blink of an eye so don`t allow yourself to be put under that kind of pressure.
     
  4. GarageDragon

    GarageDragon Registered User

    Jan 20, 2015
    28
    I apologise, I don't think I have been very clear: My mother is living, and will continue to live, at home, hopefully for a long while yet. This is just meant to be a couple of nights in a care home environment following fairly drastic bunion surgery - next week - to enable her to regain mobility and alleviate pain. Following that, she is going to have carers in her own home until she is sufficiently recovered to manage without again. I have to tell the social worker tomorrow, which care home we choose. I cannot get there to look today - she is on the other side of the country.
     
  5. Jessbow

    Jessbow Registered User

    #5 Jessbow, May 13, 2015
    Last edited: May 13, 2015
    I'd be inclined o ask the SW for suggestions-
    What locale are we talking about?

    have you considered sending her home with a 24 hour carer for a few days? prob cheaper and less worry

    What i'd have thought suitable for my mum might be your idea of hell on earth!
     
  6. Beate

    Beate Registered User

    May 21, 2014
    11,715
    Female
    London
    #6 Beate, May 13, 2015
    Last edited: May 13, 2015
    They can't put you under that kind of pressure. A patient cannot be discharged without a proper care plan in place and somewhere to go to, and I would have thought it's the social worker's job to advise you here.
     
  7. RedLou

    RedLou Registered User

    Jul 30, 2014
    1,162
    Might be worth posting the location on here, G-Dragon, in case there's anyone who has a relative in a good CH locally. Maybe alter your thread title to include the location so people living there gravitate towards it.
     

Share This Page

  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.
  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.