Has your MP signed EDM 2766?

Discussion in 'Dementia-related news and campaigns' started by Sarah Thomas, Oct 19, 2006.

  1. Sarah Thomas

    Sarah Thomas Registered User

    Oct 9, 2006
    43
    London
    #1 Sarah Thomas, Oct 19, 2006
    Last edited: Oct 23, 2006
    MPs have tabled an Early Day Parliamentary Motion (EDM) in the House of Commons.

    This important parliamentary motion urges Health Secretary Patricia Hewitt to act to ensure that doctors can continue to use their clinical judgement to prescribe effective Alzheimer's drug treatments to those who can benefit.

    It is vital that as many MPs as possible express their support for this EDM.

    Click here to see if your MP has signed EDM 2766.

    If your MPs name is not there write to them and ask them to add their signature.

    Click here to email your MP from the Alzheimer’s Society website.
     
  2. Norman

    Norman Registered User

    Oct 9, 2003
    4,348
    Birmingham Hades
    It is done Sarah
    Norman
     
  3. connie

    connie Registered User

    Mar 7, 2004
    9,519
    Frinton-on-Sea
    Thanks for the reminder Sarah.
     
  4. May

    May Registered User

    Oct 15, 2005
    627
    Yorkshire
    Email sent
     
  5. Sarah Thomas

    Sarah Thomas Registered User

    Oct 9, 2006
    43
    London
    thank you

    big thank you to you all for writing to your MP- i'd really appreciate it if you could keep me up to date with the kinds of responses you recieve:)
     
  6. cynron

    cynron Registered User

    Sep 26, 2005
    429
    east sussex
    e-mail sent
    roncyn
     
  7. alfjess

    alfjess Registered User

    Jul 10, 2006
    1,213
    south lanarkshire
    Hi
    email sent
    Alfjess
     
  8. TinaT

    TinaT Registered User

    Sep 27, 2006
    7,095
    Bolton
    Writing to mp

    Checked and my MP has signed. He will get my vote again!
     
  9. Jodie Lucas

    Jodie Lucas Registered User

    Dec 3, 2005
    57
    Eastbourne
    writing to mp

    Hello everyone,

    Have had a very non-commital letter from mp who states that they "support the independence of NICE" but believes that "the most pressing question is whether or not it is right for NICE only to consider the consequences of its decisions on the health and social care budget", and that this should be explored.

    But they didn't say whether they will be signing it or not?:confused:

    Why can't MPs' give a straight answer?

    Jodie
     
  10. KenC

    KenC Registered User

    Mar 24, 2006
    913
    Co Durham
    MP and NICE

    Hi again,

    I get the distinct feeling that our MP is refusing to sign. We asked the same question in London on the National day of action, and all he did was shrug his shoulders. He seems to agree wth the NICE decision, but will not answer any questions about it. So much for accountability.

    Regards

    kenc
     
  11. ROSEANN

    ROSEANN Registered User

    Oct 1, 2006
    909
    staffordshire

    Hi Sarah just to let you know I had a reply from my M.P today and he said that he thought the desion was one that would be deeply damaging to many patients unless the goverment change their minds.He assures me that it has been met with equal dismay indeed disbelief by many MP`s across all parties and that they will redouble thier efforts. He was under the impression that he had sighed the EDM and would check with the Table Office and if he had overlooked it he would add his name.
    All the best ROSEANN
     
  12. BeckyJan

    BeckyJan Registered User

    Nov 28, 2005
    18,972
    Derbyshire
    I have just emailed Tom Levitt today. Beckyjan
     
  13. drummer-john

    drummer-john Registered User

    Apr 29, 2005
    18
    Leeds
    I have emailed Greg Mulholland today. I thought he was supportive of the cause, so I'm disappointed to see that he has not already signed.
    John
     
  14. Nutty Nan

    Nutty Nan Registered User

    Nov 2, 2003
    787
    Buckinghamshire
    I emailed last week, but John Bercow's name is still not on the list. We've had several lengthy but wishy-washy replies from him in the last few months, and I will report back if I get a response this time .....
     
  15. twink

    twink Registered User

    Oct 28, 2005
    265
    Cambridgeshire UK
    I've emailed my MP, Malcolm Moss, his name isn't on the list.

    Sue
     
  16. Linda Mc

    Linda Mc Registered User

    Jul 3, 2005
    1,881
    Nr Mold
    #16 Linda Mc, Oct 24, 2006
    Last edited: Oct 24, 2006
    Had a reply this morning from my MP Mark Tami and I quote



    " Having been invoved in the support of the appeal and disappointed at the rejection I would like to inform you that I have signed the Early Day Motion to show support for people with dementia and their carers"


    Perhaps the list could be updated?

    Linda
     
  17. hairwench

    hairwench Registered User

    Oct 1, 2006
    16
    wisbech
    I have just received an email from my local MP telling me he will reply fully to me by letter, so I will wait to see what he has to say !
    He hasn't added his signature to the list yet though.......................
     
  18. twink

    twink Registered User

    Oct 28, 2005
    265
    Cambridgeshire UK
    Mine (Malcolm Moss) has signed it but his name doesn't appear on the list. He feels strongly about this issue and will keep me informed on what comes of it. He will be writing to the secretary of state.

    Sue
     
  19. Nutty Nan

    Nutty Nan Registered User

    Nov 2, 2003
    787
    Buckinghamshire
    #19 Nutty Nan, Oct 25, 2006
    Last edited: Oct 25, 2006
    Reply

    Herewith MP's reply, as promised:
    Thank you very much for your letter about NICE's final decision on Alzheimer's drugs. I realise that this decision must come as a massive disappointment.

    It is important to note from the outset that this decision will affect new patients only. Those already receiving the drugs will be able to continue to do so unless and until their carer or doctor deems it inappropriate.

    I must also make it clear from the outset that I support the independence of NICE. It is to my mind, quite correct that decisions on how to use the health service budget are made by health professionals. Government and politicians should set NHS funding but it is then the people on the ground who are best placed to manage the NHS and take the appropriate decisions.

    That said, the trial of these particular drugs has yet again brought to the fore some very serious questions that need to be asked about the NICE appraisal process. The most pressing question is whether or not it is right for NICE to consider the consequences of its decisions on the health and social care budget. There is an argument for NICE also considering more broadly the issues of cost effectiveness, such as the impact on carers and families. This now needs to be explored.

    Thank you, once again, for writing.
    Yours sincerely, John Bercow


    This sounds like a typical 'Politician's answer', and I am none the wiser as to whether Mr. Bercow is planning to sign the EDM in question or not. In fact, I get the impression that he is trying to get rid of me with his placatory second paragraph - but as the 'massive disappointment' has actually left me hopping mad, I am not about to give up. We've had the benefit of the drugs, but I'd like to know that others who are yet to set off on this uphill path will be afforded the same support.
     
  20. May

    May Registered User

    Oct 15, 2005
    627
    Yorkshire
    No reply...yet

    Sure does Nutty Nan.:( I haven't had a reply yet and can almost hear my MP saying, as my latest email hits his desk, 'Not another one from her!' :D If there's one positive thing that having dementia in the family has taught me, it's how to be 'pushy'........:D :p
     

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