Hard for me to admit, but this is how i feel

honeybears

Registered User
Oct 18, 2014
41
0
Hampshire
Someone I had never met died today and I cried for those that will miss her, yet I can find no compassion for my father who is suffering from Vascular Dementia.

I’ve always known that my father could be difficult and that he was very domineering of my Mum, nothing physical, but what you would probably call mental bullying but it wasn’t until Mum became ill and was diagnosed with Dementia herself that I found out the real extent of my Father’s behaviour and it was because of his behaviour and his refusal to listen to anything anyone else said in Mum’s best interest, and just do what he thought was right, that I made the decision to place Mum in full time care and that was almost 2 years ago now.

Now my Father has been diagnosed with Dementia, you would think that I would want to help and assist him the same way I did for Mum (which I do in many ways but always from a distance) but most of the time I do what I have to do and leave the rest to him cause I just find him so frustrating and at times rude and ungrateful and for that reason the least I see of him the better and no, it is not the symptoms of his Dementia making him this way – this is how he has been for a long time now. The only people he has in his life are myself, my partner and Mum – everyone else in the outer circle of our family make no effort whatsoever to make contact with Dad, and those that do make contact it is only with me to ask after Mum and he has no friends.

Since becoming responsible for both my parents wellbeing I have found out very quickly just how my father can be and in a lot of people’s opinions how difficult it was for Mum living with someone so domineering and set in his ways. I have found out over time that he constantly refused to become involved in any family events or social activities and eventually people stopped asking, even though Mum was very much interested but didn’t go unless he wanted to. Now he is 77, lives alone and even though he has Dementia, I like many others in our family can find no sympathy for his situation whatsoever. It seems that years he spent ruling the roost and doing things his way have led him to become a lonely old man that no-one wants to spend any time with.

Admitting and accepting this has been a long time coming as it has weighed heavy on my mind, but slowly I am accepting that I should not feel bad about my thoughts, what has been difficult is admitting them. For many years I have just been sheltered from how things really were but I realise that my life and that of my partner does count and we should not let his situation rule our lives as a lot of time it feels like it does. My Fathers wellbeing will someday become the responsibility of a care provider I am sure and with how I feel at the moment that time will not come soon enough.
 

Canadian Joanne

Registered User
Apr 8, 2005
17,710
0
70
Toronto, Canada
Honeybears,
You are not the first person to have such feelings. There are many people who are caring for someone more from a sense of duty than anything else. Even those who are or have been caring for someone they deeply love have had moments when they felt they couldn't go on or wished everything were over.

I myself felt like that 10 and 11 years ago when my mother was being absolutely horrible. She was in a nursing home and I still felt that way, as she was so very awful, verbally and physically attacking people. I didn't want her dead, I basically just wanted to be away from the situation. I had been incredibly close to my mother and the changes that her AD brought about horrified and devastated me. Time went on and as her disease progressed she became calmer. Things are very different now but I clearly remember how stressed I was.

Yes, you have these feelings but that is natural. I think it's very good that you admit & accept you have them. I feel it means you can move on. You do need to take care of yourself and your partner. You matter.
 

honeybears

Registered User
Oct 18, 2014
41
0
Hampshire
Thank you for your kind words - I think what worried me the most was that admitting how I felt people would think I was horrid - members such as yourself can offer such reassurance when sometimes you feel like you are the only one feeling this way
 

marionq

Registered User
Apr 24, 2013
6,449
0
Scotland
How could anyone be critical of your feelings? Of all the places where we need to walk a mile in someone else's shoes to understand how they feel - this is it! We are tested to the full emotionally with this horrible illness.

Good wishes to you.
 

RedLou

Registered User
Jul 30, 2014
1,161
0
Honeybears, having the courage to tell the truth - as you have done - is absolutely invaluable in helping other carers on here. Well done. Go gently on yourself. No matter that you are trying to distance yourself, you are feeling this in your heart and soul very much - that is apparent. It's often incredibly difficult to admit that one's parents are flawed, sometimes deeply flawed, and far from admirable. Factor in dementia as well and the way it can overtake the carer's emotions and every waking thought and it's a cocktail for stress. Do look after yourself. *hug*
 

Quilty

Registered User
Aug 28, 2014
1,050
0
GLASGOW
Hello Honeybears,

I care for my mother who also has vascular dementia. We don't have an easy relationship. As a mother she has basically failed all of us. I have 2 sisters who stay away from her due to her attitude and way of treating us. I was treated a little better as the youngest but it was never easy. We were always bit part players in her main character drama. She had no empathy for our feeling or needs. We were just an extension of her. The 20 years since my Dad dies has been hard as she has been so needy and difficult. There were times when she was at home, refusing any help from anyone but me and treating me like dirt at the same time, that I really hated her and wanted to walk away with all my heart.

Now she is in the last stages of dementia. I can only pity her. I will be upset when she dies because all hope of a good mother relationship will be gone. My children will lose their Grandmother and my last link with my lovely dad will be over. I am caring for her because I think it is my duty and because I promised my Dad I would.

You are doing a caring role even though you don't care. This makes you a hero in my book. Don't feel bad. Do what you can and make others take up the slack, even if that means strangers. They don't carry your lifes pain around with them when they look at your dad or deal with him.
 

jorgieporgie

Registered User
Mar 2, 2016
1,982
0
YORKSHIRE
Feel Lonely

I look after my Mother with Vascular Dementia. I feel lonely and isolated as I am an only child and have no other help. My Mother was my best friend and we have always been together. I am starting to recent this situation more each day and feel guilty for feeling like this. My life is revolved round her and I do not have a life of my own anymore.
 

Quilty

Registered User
Aug 28, 2014
1,050
0
GLASGOW
I look after my Mother with Vascular Dementia. I feel lonely and isolated as I am an only child and have no other help. My Mother was my best friend and we have always been together. I am starting to recent this situation more each day and feel guilty for feeling like this. My life is revolved round her and I do not have a life of my own anymore.

Have you asked social work to get involved. A day care centre could be a great thing for both of you. Try to get as much help as possible. Its a hard road to walk. Big hub XX Quilty
 

Witzend

Registered User
Aug 29, 2007
4,283
0
SW London
How you feel is entirely understandable.
The fact is, not everybody has or had a good relationship with their parents. Some people just aren't nice, but that doesn't stop them becoming parents. Some people are downright unpleasant, but that doesn't stop them, either.

It's unfortunate that the frequent tendency for so many people to refer to 'your loved one' when writing or talking about dementia, can make anyone with a ''never was nice' one, who they can't feel much or indeed anything for, feel bad or guilty, or very much out of the ordinary.

I suspect that there are quite a few 'never was nice' ones there.
 

jorgieporgie

Registered User
Mar 2, 2016
1,982
0
YORKSHIRE
Have you asked social work to get involved. A day care centre could be a great thing for both of you. Try to get as much help as possible. Its a hard road to walk. Big hub XX Quilty

I have just found out about the memory café near where we live and going to attend next week. Thank you for the big hug xx
 

Pear trees

Registered User
Jan 25, 2015
441
0
My mum falls into the 'never was nice' category.She told us repeatedly she did not want us, we were mistakes who ruined her life. She never cooked or cleaned and we lived on fish and and chips and sandwiches. She wanted nothing to do with her grandchilden and greatgrandchildren. She has always been difficult, argumentative, selfish and self centred, and I could never do anything right. I am involved in her care through duty, there is no love in it, and my SIL only cares because I pay her. My brother has not visited in over 3 years, and the rest of the family will not see her.
 

cobden28

Registered User
Jan 31, 2012
442
0
Someone I had never met died today and I cried for those that will miss her, yet I can find no compassion for my father who is suffering from Vascular Dementia.

I’ve always known that my father could be difficult and that he was very domineering of my Mum, nothing physical, but what you would probably call mental bullying but it wasn’t until Mum became ill and was diagnosed with Dementia herself that I found out the real extent of my Father’s behaviour and it was because of his behaviour and his refusal to listen to anything anyone else said in Mum’s best interest, and just do what he thought was right, that I made the decision to place Mum in full time care and that was almost 2 years ago now.

Now my Father has been diagnosed with Dementia, you would think that I would want to help and assist him the same way I did for Mum (which I do in many ways but always from a distance) but most of the time I do what I have to do and leave the rest to him cause I just find him so frustrating and at times rude and ungrateful and for that reason the least I see of him the better and no, it is not the symptoms of his Dementia making him this way – this is how he has been for a long time now. The only people he has in his life are myself, my partner and Mum – everyone else in the outer circle of our family make no effort whatsoever to make contact with Dad, and those that do make contact it is only with me to ask after Mum and he has no friends.

Since becoming responsible for both my parents wellbeing I have found out very quickly just how my father can be and in a lot of people’s opinions how difficult it was for Mum living with someone so domineering and set in his ways. I have found out over time that he constantly refused to become involved in any family events or social activities and eventually people stopped asking, even though Mum was very much interested but didn’t go unless he wanted to. Now he is 77, lives alone and even though he has Dementia, I like many others in our family can find no sympathy for his situation whatsoever. It seems that years he spent ruling the roost and doing things his way have led him to become a lonely old man that no-one wants to spend any time with.

Admitting and accepting this has been a long time coming as it has weighed heavy on my mind, but slowly I am accepting that I should not feel bad about my thoughts, what has been difficult is admitting them. For many years I have just been sheltered from how things really were but I realise that my life and that of my partner does count and we should not let his situation rule our lives as a lot of time it feels like it does. My Fathers wellbeing will someday become the responsibility of a care provider I am sure and with how I feel at the moment that time will not come soon enough.

The relationship you describe between your parents could have been written about my ex-husband and myself. We are now separated (amicably) with a divorce to follow by mutual consent.

The more people talk to me about my ex., the more I realise things nearly always had to be 'his way or no way' and for many years he's not wanted to have more than the minimum contact with his family, who all live locally. Our daughter, who I love dearly and get on very well indeed with, has cut her Dad out of her life completely and wants no further contact with him (as has he with her) because of arguments between them in the past, in which things were said that neither can forget or forgive.

Our social life ceased forty years ago shortly after we were married because he didn't think that married couples needed to go out together. He didn't want to attend the wedding of his eldest niece so we weren't invited to the weddings of the other nieces either.

Now that we are separated and each living alone, I have joined a couple of social groups and have a small circle of friends I'm very happy with. My ex., always a loner, is now starting to suffer with aches and pains that you get when you're older (he's 66, I'm 60) and I think he's a rather sad and lonely man. None of his family want to have contact with him because he was so against socialising with them in years gone by - and if he ever became seriously ill then I'm sorry, but he'd have to sink or swim by himself.

This is what you get and end up with if you deliberately antagonise your family and isolate yourself from friends in your younger years; you end up as a bitter and lonely older person.
 

purplehead

Registered User
Jun 17, 2015
20
0
N Ireland
I look after my Mother with Vascular Dementia. I feel lonely and isolated as I am an only child and have no other help. My Mother was my best friend and we have always been together. I am starting to recent this situation more each day and feel guilty for feeling like this. My life is revolved round her and I do not have a life of my own anymore.

Hi jorgieporgie I am a 51 year old with vascular dementia I also am only child lost my dad to heart attack very suddenly 12 months later my mum was diagnosed with terminal cancer I no the feeling you suddenly are in charge try to do the best for her feel guilty if you leave her ,every morning u wake u feel so tied down, guilty,dread what coming next but you will keep going if u want to chat I always here
 

jorgieporgie

Registered User
Mar 2, 2016
1,982
0
YORKSHIRE
Hi jorgieporgie I am a 51 year old with vascular dementia I also am only child lost my dad to heart attack very suddenly 12 months later my mum was diagnosed with terminal cancer I no the feeling you suddenly are in charge try to do the best for her feel guilty if you leave her ,every morning u wake u feel so tied down, guilty,dread what coming next but you will keep going if u want to chat I always here

Thanks Purplehead, I'm so glad I came on to this web site there are lots of nice people to talk to and you realise your not going through this on your own. I'm sorry to hear you have vascular dementia how long have you had it. I'm 56 and my mum is 85 her's only came on two years ago. I have moved her in with me now but she is going down hill rapidly.Do you have any help or are you living alone.
 

TooHard

Registered User
Sep 16, 2015
109
0
I'm another one who's stuggling with guilt about resenting how much caring I feel I have to do for my mum. We've always had a difficult relationship and it doesn't help that it's a matter of pride to her that she's "always been difficult" (I've heard that soooooo often, most recently this morning when the SW visited). I drive 100 miles to be criticised and have frustrating arguments and I'd love to have the nerve not to do it again. Then she has a bad day when she's obviously frightened and I feel sorry for her and it all starts again.
 

purplehead

Registered User
Jun 17, 2015
20
0
N Ireland
Negative side of disease

Thanks Purplehead, I'm so glad I came on to this web site there are lots of nice people to talk to and you realise your not going through this on your own. I'm sorry to hear you have vascular dementia how long have you had it. I'm 56 and my mum is 85 her's only came on two years ago. I have moved her in with me now but she is going down hill rapidly.Do you have any help or are you living alone.

I live with my partner and 2 sons 18 and 21 am at stage 3-4good days and bad very conscious don't want them to feel how I did caring for my mum sometimes think this is my punishment for the feelings of resentment I had bout mum
 

Aisling

Registered User
Dec 5, 2015
1,804
0
Ireland
Someone I had never met died today and I cried for those that will miss her, yet I can find no compassion for my father who is suffering from Vascular Dementia.

I’ve always known that my father could be difficult and that he was very domineering of my Mum, nothing physical, but what you would probably call mental bullying but it wasn’t until Mum became ill and was diagnosed with Dementia herself that I found out the real extent of my Father’s behaviour and it was because of his behaviour and his refusal to listen to anything anyone else said in Mum’s best interest, and just do what he thought was right, that I made the decision to place Mum in full time care and that was almost 2 years ago now.

Now my Father has been diagnosed with Dementia, you would think that I would want to help and assist him the same way I did for Mum (which I do in many ways but always from a distance) but most of the time I do what I have to do and leave the rest to him cause I just find him so frustrating and at times rude and ungrateful and for that reason the least I see of him the better and no, it is not the symptoms of his Dementia making him this way – this is how he has been for a long time now. The only people he has in his life are myself, my partner and Mum – everyone else in the outer circle of our family make no effort whatsoever to make contact with Dad, and those that do make contact it is only with me to ask after Mum and he has no friends.

Since becoming responsible for both my parents wellbeing I have found out very quickly just how my father can be and in a lot of people’s opinions how difficult it was for Mum living with someone so domineering and set in his ways. I have found out over time that he constantly refused to become involved in any family events or social activities and eventually people stopped asking, even though Mum was very much interested but didn’t go unless he wanted to. Now he is 77, lives alone and even though he has Dementia, I like many others in our family can find no sympathy for his situation whatsoever. It seems that years he spent ruling the roost and doing things his way have led him to become a lonely old man that no-one wants to spend any time with.

Admitting and accepting this has been a long time coming as it has weighed heavy on my mind, but slowly I am accepting that I should not feel bad about my thoughts, what has been difficult is admitting them. For many years I have just been sheltered from how things really were but I realise that my life and that of my partner does count and we should not let his situation rule our lives as a lot of time it feels like it does. My Fathers wellbeing will someday become the responsibility of a care provider I am sure and with how I feel at the moment that time will not come soon enough.

Hi Honeybears,

Your feelings are real and it is so good that you can write about them here. You also have great courage. You and your partner's life together is crucially important. You are entitled to be happy.

Virtual hugs from Ireland

Aisling