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Hallucinations and strange behaviour

Brother47

Registered User
Jan 18, 2020
70
Hi again, to those who remember my previous posts, my brother, with FtD (73 and lives alone) is having twice/three times daily care 7 days a week, has now started doing very odd things. He gets dressed in the mornings and then stands beside the shower and points the shower head at himself, with his clothes on, then he puts his outdoor jacket on and sits downstairs waiting for the carer to arrive. He’s also started peeing in two places by the front door and in the downstairs hallway. When I was there yesterday, he started pointing to the window blinds asking why people were shining lights at him. It’s all a. Big worry at how fast his condition is deteriorating but Social Services Uk still say he’s best off at home rather than going into a care home. I only have PoA over his property and finances so can’t move him into a care home where I think he’d be safer. I have booked a phone consultation with the doctor on Monday, to discuss the progression of his condition. He sleeps a lot in the day even when he’s eating his food. I just feel that daily care visits aren’t enough. Having a live in carer is not an option. And advise or thoughts are v welcome.
 

MartinWL

Registered User
Jun 12, 2020
315
Does he have the capacity to sign a health and welfare POA? Capacity is decision specific so capacity to agree to this might be a simple decision that he could make. It is essentially " do you trust your brother" and that might be quite a simple question that he can understand and answer. Of course you can't do this if he is beyond understanding what a POA is. If not you might have to apply for health and welfare deputy status, to the court of protection.
 

Brother47

Registered User
Jan 18, 2020
70
Thank you for your reply MartinWL. I’m not sure he could answer this. I think he’s beyond being capable of giving an honest or sensible answer. The social services lady, who’s been allocated to him for the last 18 months, thinks that in the not too distant future she will arrange for him to be assessed and if the result means that the authorities think he could be at risk by staying at home, then they will recommend that he needs to go into full time care. I know at the moment he will react badly to being moved anywhere so legally the care home will have an obligation to release him back to his home. I will have a look into applying for health and welfare deputy status. It may be the best option. Thank you. Your response is very helpful.
 

Sarasa

Registered User
Apr 13, 2018
1,830
If your brother is self funding you could start looking at care homes without social services input, if he isn’t I’d start pushing for the assessment now as it could take some time to arrange. I moved mum to a care home without her consent. I do have health and welfare LPA so I’m not sure how easy it is to move someone without it. After she moved the home applied for a Deprivation of Liberty Safeguarding (DoLS) as mum kept trying to escape. The people who assessed her, a social worker and a psychiatrist, said she no longer had capacity to make decisions about where she lived. Your brother sounds further along than my mum was. She was still sort of managing at home , just going out and putting herself at risk by drinking with random strangers.
 

Shedrech

Volunteer Moderator
Dec 15, 2012
9,307
Yorkshire
hi @Brother47
just to mention that Deputyship for health and welfare is very rarely granted and is most often linked to a particular situation/decision .... the fee will not be refunded, so you may want to not waste the money

Social Services will organise a Best Interest meeting should they consider your brother needs to move into residential care and no longer has capacity to make that decision himself (especially necessary if he is saying he does not want to move; his wants can be overided by his needs/the action to be taken to keep him safe in his best interest) .... as his close family member your opinion should be sought and taken into account
 

MartinWL

Registered User
Jun 12, 2020
315
Deputyship for health may be rare but there is provision for it in the 2005 Act. This sounds like exactly the sort of situation envisaged by Parliament, the patient has insufficient capacity for relevant decisions and a capable family member is available to undertake the responsibilities.
 

canary

Registered User
Feb 25, 2014
13,641
South coast
I had financial deputyship for mum and looked into getting health and welfare deputyship too, but I was advised by a solicitor who specialised in this field not the go for it as, although there is provision for it, it is very rarely granted and then only under special circumstances.
 

Brother47

Registered User
Jan 18, 2020
70
If your brother is self funding you could start looking at care homes without social services input, if he isn’t I’d start pushing for the assessment now as it could take some time to arrange. I moved mum to a care home without her consent. I do have health and welfare LPA so I’m not sure how easy it is to move someone without it. After she moved the home applied for a Deprivation of Liberty Safeguarding (DoLS) as mum kept trying to escape. The people who assessed her, a social worker and a psychiatrist, said she no longer had capacity to make decisions about where she lived. Your brother sounds further along than my mum was. She was still sort of managing at home , just going out and putting herself at risk by drinking with random strangers.
 

Brother47

Registered User
Jan 18, 2020
70
Hi Sarah’s, yes he’s self funding. It’s the deprivation of Liberty act that stops me from moving him into a care home. We know he’ll react badly and most likely will try to get home. I’ve spoken to a couple of care homes who warn me about this. Social services have said they will support me if he needs to go into 24/7 care but as yet, they don’t think he’s at a stage to need assessing but, the SS lady assigned to his case hasn’t seen him for about 6 weeks. He’s moved on rapidly in that time. I’ve contacted her and asked if she will visit him ASAP with a view to arranging an assessment. A lot of the time he seems oblivious of what’s going on around him yet when I talk to him about moving somewhere with people around him and having his own room, he sparks up and says he doesn’t want that and gets angry. That passes quickly and he drops off to sleep. Thank you for your response. I think I need to get this assessment underway as soon as possible.
 

Brother47

Registered User
Jan 18, 2020
70
hi @Brother47
just to mention that Deputyship for health and welfare is very rarely granted and is most often linked to a particular situation/decision .... the fee will not be refunded, so you may want to not waste the money

Social Services will organise a Best Interest meeting should they consider your brother needs to move into residential care and no longer has capacity to make that decision himself (especially necessary if he is saying he does not want to move; his wants can be overided by his needs/the action to be taken to keep him safe in his best interest) .... as his close family member your opinion should be sought and taken into account
Thanks Shredrech, that’s u
hi @Brother47
just to mention that Deputyship for health and welfare is very rarely granted and is most often linked to a particular situation/decision .... the fee will not be refunded, so you may want to not waste the money

Social Services will organise a Best Interest meeting should they consider your brother needs to move into residential care and no longer has capacity to make that decision himself (especially necessary if he is saying he does not want to move; his wants can be overided by his needs/the action to be taken to keep him safe in his best interest) .... as his close family member your opinion should be sought and taken into account
Shredrech, Thank you for pointing that out about the deputyship for health and welfare. I really don’t want to waste time and money if I can avoid it. He does say he doesn’t want to move. SS have been helpful with supplying aids to help him stay home but he just doesn’t use them. I live a 3 hour drive from him otherwise I’d be able to help more. Im on the verge of upping his care visits but don’t really feel that’s going to achieve much. Best interest meeting sounds hopeful. Thank you.
 

Brother47

Registered User
Jan 18, 2020
70
I had financial deputyship for mum and looked into getting health and welfare deputyship too, but I was advised by a solicitor who specialised in this field not the go for it as, although there is provision for it, it is very rarely granted and then only under special circumstances.
Thanks Canary. That’s worth knowing 👍
 

Mobbin17

New member
May 25, 2020
9
If your brother is self funding you could start looking at care homes without social services input, if he isn’t I’d start pushing for the assessment now as it could take some time to arrange. I moved mum to a care home without her consent. I do have health and welfare LPA so I’m not sure how easy it is to move someone without it. After she moved the home applied for a Deprivation of Liberty Safeguarding (DoLS) as mum kept trying to escape. The people who assessed her, a social worker and a psychiatrist, said she no longer had capacity to make decisions about where she lived. Your brother sounds further along than my mum was. She was still sort of managing at home , just going out and putting herself at risk by drinking with random strangers.
7
 

Brother47

Registered User
Jan 18, 2020
70
Deputyship for health may be rare but there is provision for it in the 2005 Act. This sounds like exactly the sort of situation envisaged by Parliament, the patient has insufficient capacity for relevant decisions and a capable family member is available to undertake the responsibilities.
ThanksMartinWL