Expert Q&A: Rare dementias - Tues 3 March, 3-4pm
I'm afraid it was alcohol rather than tea, but just one glass. X@Lavender45
I really have no intention of making you more cross. But how blooming dare that SW say that. Too right report her. look for problems these were in your face. I’m so cross - idiots bet they don’t actually have loved ones in this position.
So in my opinion you are spot in with your action and right to do what you’ve done on every occasion.
Ok let’s take a deep breath together.
Time for a cuppa or something better. xx
How I would love it if we could somehow swop minds with those people and let them have a week of our lives to let them truly see what we do and what we have to endure. Lavender I am so sorry for you that you are being put through this with your mum. It's just dreadful. They just have no idea, do they, and some do not even do anything to help us. I would go higher in Social Services - maybe they can move your mum somewhere more suitable/safer? How on earth can they get away with continuing to make mistakes with the meds?! Unbelievable.
I had a bit of a meltdown with the DNs today. Apparently the 'system' has removed the comment that they should call me asap in the morning so that I know roughly when they are coming and so therefore can have mum ready in bed. I know they probably have other more serious cases than mum, but it's my day for a break - I need to know! A lady from the office called me and talked nonstop and would not let me get a word in to try to explain why I wanted them to call me, I got very upset on the phone. The DN who came was lovely, apologised and we now have a new system in place where they will come by 11, and if not I am then to call to find out what's gone wrong! I have also cut the visits from 3 to 2 a week - the very good news is that mum's pressure sore is healing nicely - it's smaller than it was and the last two nurses said there is nothing to pack as it's too shallow. Thank God for that, I was really, really worried that it would get infected because of where it is, and that some kind of sepsis would carry mum off.
We are still working on the mobility. Mum can stand on the stand aid, with help, and I can now transfer her using a safety belt. I really hate the evening carer calls, so hope that maybe in a few weeks, when I'm a bit more confident with the transfers, I can stop the evening calls, at least on some nights. It will mean more work for me, but will reduce the horde of people still tramping through my home. Oh how I long for the times we had a carer only a few times a week - I thought that was bad - little did I know!
I don't feel so low and desperate now, I think I have gathered myself up again. Mum stays at home for a bit longer, for now, anyway. I'm not sure how this can possibly get any worse - and if it does, then it will probably mean her just spending more or all of her time in bed - which in fact may become easier for me, if that makes sense.
"How much longer?" keeps running through my head. Sadly no one can give me an answer.
Hi @jorgieporgieHi Everyone,
Just caught up, I really don't like this new TP no idea how to send PM's anymore.